CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 226 - 250 of 409

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C08162	C08162	National Institute on Aging (NIA) or Reagan Institute neuropathological criteria scale	National Institute on Aging (NIA)/Reagan Institute neuropathological criteria used to determine the likelihood of dementia being due to Alzheimer's disease.	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15094	C15094	Lacunes single or multiple description text	The text description of the lacunes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15030	C15030	Brain atrophy cortical neuronal nuclear inclusions severity result	Quantitative result of the severity of cortical neuronal nuclear inclusions	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15054	C15054	Brain atrophy substantia nirgra pars compacta neuronal loss severity result	Quantitative result of the severity of neuronal loss in the pars compacta	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08173	C08173	Ischemic hemorrhagic or vascular pathology indicator	Indicator of the presence of ischemic, hemorrhagic, or vascular pathology	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15102	C15102	Arteriosclerosis indicator	Indicator of arteriosclerosis (small parenchymal arteriolar disease)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15038	C15038	Brain atrophy neuronal loss nucleus accumbens severity result	Quantitative result of the severity of neuronal loss in the nucleus accumbens	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15062	C15062	Brain atrophy nucleus coeruleus Lewy body containing neurons and Lewy neurites severity result	Quantitative result of the severity of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14970	C14970	Brain harvesting date and time	Date and time, if known the brain was harvested	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15110	C15110	Atherosclerotic luminal stenosis percentage range	Range for the estimated luminal stenosis percentage if stenotic vascular changes (of the circle of Willis)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C04802	C04802	Death date and time	Date (and time, if known) of participant's/subject's death	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18741	C18741	Other pathology ischemic vascular disease specify text	The free-text field related to 'Other pathology ischemic vascular disease indicator'. Indicator of the presence of another ischemic or vascular disease not specifically mentioned previously	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15111	C15111	Arteriosclerosis severity score	Severity score for arteriosclerosis (small parenchymal arteriolar disease)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15047	C15047	Brain atrophy subthalamic nucleus neuronal loss indicator	Indicator of neuronal loss in the subthalamic nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15071	C15071	Brain atrophy medulla oblongata inferior olivary nucleus indicator	Indicator of neuronal loss of the inferior olivary nucleus in the medulla oblongata	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14979	C14979	Brain atrophy coronal sections cerebral white matter status	Status of cerebral white matter atrophy of the coronal section upon gross examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17757	C17757	Striatum atrophy hypothalamus atrophy status	Status of atrophy in the hypothalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15079	C15079	Brain atrophy cerebellum cortical neuronal loss in bergman gliosis status	Status of cortical neuronal loss in the Bergman gliosis (BG) of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14987	C14987	Brain atrophy striatum body of caudate nucleus (CN) severity result	Quantitative result of the severity of atrophy located in the body of the caudate nucleus (CN) (at the coronal section passing through the lateral geniculate body).	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08153	C08153	Brain tissue formalin-fixed indicator	Indicator of whether formalin-fixed brain tissue is accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17765	C17765	Striatum atrophy hydrocephalus lateral ventricle severity result	Quantitative result of the severity of hydrocephalus located in the lateral ventricle	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15087	C15087	Ischemic or hemorrhagic vascular territories name	Name of the vascular territories where ischemic or hemorrhagic changes occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15023	C15023	Brain atrophy striatum brainstem status	Status of brainstem atrophy in the striatum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08163	C08163	CERAD neuropathological criteria scale	CERAD neuropathological criteria used to determine the probability of the participant/subject having Alzheimer's disease	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15095	C15095	Hemorrhages single or multiple event category	Category of the hemorrhages	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.