CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 409

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1225-C17737	C17737	Chorea anatomic site informant type	Anatomic site of the participant's/subject's body affected by chorea as noted by the informant	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C18990	C18990	Huntingtons Disease motor symptom first appeared informant other text	The free-text field related to 'Huntingtons Disease motor symptom first appeared informant type' specifying other text. The type of initial motor symptoms of Huntington disease (HD) described by the informant	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C14951	C14951	Motor symptom first appeared self report date and time	Date of the first motor symptom(s) as noted by the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C14958	C14958	Diagnosis physician indicator	Has diagnosis been made by a physician?	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C17738	C17738	Informant participant relationship type	The relationship of the informant to participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C18991	C18991	Huntingtons Disease developing motor symptom other text	The free-text field related to 'Huntingtons Disease developing motor symptom type' specifying other text. Type(s) of motor symptoms of Huntington disease (HD) which developed over the course of Illness	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C14952	C14952	Huntingtons Disease motor symptom first appeared self report type	The type of first motor symptoms described by the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C14959	C14959	Diagnosis physician year date	The year the physician diagnosed the participant/ subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C17739	C17739	Informant participant family member relationship text	The free-text field to specify the relationship of the informant to a family member of the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C19059	C19059	Informant participant relationship other text	The free-text field related to 'Informant participant relationship type' specifying other text. The relationship of the informant to participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C14953	C14953	Chorea anatomic site	Anatomic site of the participant's/subject's body affected by chorea	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C14960	C14960	Diagnosis based abnormality type	What kind of abnormalities was the diagnosis based on?	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C17740	C17740	Chorea anatomic site physician developing type	Anatomic site of the participant's/subject's body affected by chorea as noted by a physician as a developing issues from disease	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C19060	C19060	Physician specialty other text	The free-text field related to 'Physician specialty type' specifying other text. The specialty of the physician who made the diagnosis	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C17733	C17733	Person completing form name	Name of person completing the form	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C17742	C17742	Physician specialty type	The specialty of the physician who made the diagnosis	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C14954	C14954	Motor symptom improvement since diagnosis indicator	the indicator whether motor symptoms have improved since the first diagnosis	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C17734	C17734	Person completing the form title text	Title/Credentials/Training of the person completing the form	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C17743	C17743	Physician confidence level basis type	What the physician confidence level is primarily based on	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17765	C17765	Striatum atrophy hydrocephalus lateral ventricle severity result	Quantitative result of the severity of hydrocephalus located in the lateral ventricle	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15087	C15087	Ischemic or hemorrhagic vascular territories name	Name of the vascular territories where ischemic or hemorrhagic changes occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15095	C15095	Hemorrhages single or multiple event category	Category of the hemorrhages	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15055	C15055	Brain atrophy substantia nigra pars reticulata neuronal loss indicator	Indicator of neuronal loss in the pars reticulata of the substantia nigra	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15103	C15103	Amyloid angiopathy indicator	Indicator of presence of cerebral amyloid angiopathy	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15063	C15063	Brain atrophy nucleus coeruleus globosum neuronal tangles status	Status of globosum neuronal tangles (GNT) in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 151 - 175 of 409

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.