CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Huntington's Disease	Huntington's Disease
F1229-C14937	C14937	Cytosine adenine guanine repeats smaller allele number	The number of cytosine adenine guanine (CAG) repeats on the smaller allele	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F3107-C17394	C17394	Berg Balance Scale (BBS) - stand one leg scale	The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Huntington's Disease	Huntington's Disease
F3107-C14693	C14693	Berg Balance Scale (BBS) - sit stand scale	The scale for assessment of sitting to standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Huntington's Disease	Huntington's Disease
F1230-C14940	C14940	Cytosine adenine guanine repeat known indicator	Whether the participant's/subject's Cytosine Adenine Guanine (CAG) repeat lengths are known	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F3107-C14701	C14701	Berg Balance Scale (BBS) - retrieve floor object scale	The scale for assessment of picking up object from the floor from a standing position based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Huntington's Disease	Huntington's Disease
F1229-C14938	C14938	Cytosine adenine guanine repeat test indicator	Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1269-C20376	C20376	Pittsburgh Sleep Quality Index (PSQI) - Awaken past month time	The wake up time (recorded as 24-hour clock or military time) for the majority of the mornings in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1236-C08239	C08239	Imaging echo duration	Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1269-C20385	C20385	Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale	The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1225-C14959	C14959	Diagnosis physician year date	The year the physician diagnosed the participant/ subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1236-C10570	C10570	Imaging contrast agent used indicator	Indicator of whether an imaging contrast agent was used for the scan	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1225-C17739	C17739	Informant participant family member relationship text	The free-text field to specify the relationship of the informant to a family member of the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C18997	C18997	Clinicopathology diagnosis final other text	the free-text related to 'Clinicopathology diagnosis final type' specifying other text. The participant/subject's final clinicopathological diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C14964	C14964	Sedation used indicator	Indicator of whether the participant was administered any sedation	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F2370-C17733	C17733	Person completing form name	Name of person completing the form	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1225-C19059	C19059	Informant participant relationship other text	The free-text field related to 'Informant participant relationship type' specifying other text. The relationship of the informant to participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1269-C20360	C20360	Pittsburgh Sleep Quality Index (PSQI) - Pain past month scale	The scale to which the subject had pain during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1236-C18700	C18700	Imaging matrix size value other text	The free-text field related to 'Imaging matrix size value', specifying other text. Value representing the imaging matrix size in millimeters	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F2370-C53902	C53902	Stroop Color and Word Test (SCW) - Color residual score	Score (residual) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1269-C20368	C20368	Pittsburgh Sleep Quality Index (PSQI) - Partner report disorientation past month scale	The scale to which the subject's partner reported disorientation or confusion during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1211-C08081	C08081	Twin sibling type	Type of twin the participant/subject has	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15077	C15077	Brain atrophy cerebellum cortical neuronal loss in effective layer indicator	Indicator of cortical neuronal loss in the effective layer (Purkinje cells) of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14953	C14953	Chorea anatomic site	Anatomic site of the participant's/subject's body affected by chorea	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17763	C17763	Striatum atrophy red nucleus atrophy status	Status of atrophy in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.