CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 22 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2684-C53077	C53077	Migraine headache light indicator	Indicator as to whether light bothers participant/subject when experiencing a migraine headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2684-C56784	C56784	Headache re-start medication taken other text	Text describing another type of pain medication taken by the participant/subject for his/her re-started headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2685-C13211	C13211	Generalized Anxiety Disorder (GAD-7) - feeling afraid scale	Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Headache	Headache
F2673-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C15969	C15969	Headache or migraine medication taken type	Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C15980	C15980	Headache affected activity type	Types of school or other activities affected by the headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C56780	C56780	Headache reduce activity level indicator	The indicator relating to whether the participant/subject's headache reduced his/her activity level	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15897	C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2684-C15962	C15962	Headache affect activity level indicator	Indicates whether the headache changes activity level (i.e., stop playing)	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2032-C07437	C07437	Patient Health Questionnaire (PHQ) - Concentration impairment score	Score of how much the subject has been bothered with troubling concentrating in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2684-C15977	C15977	Headache end date and time	The time of the day the headache ended	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2624-C56043	C56043	Headache migraine onset time	The time that the subject's headache started	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2684-C56777	C56777	Headache start date and time	The time at which the participant/subject's headache started	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2684-C56785	C56785	Headache premonitory symptom type	The type of premonitory symptom(s) (symptoms that come before headache) that the participant/subject experienced	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2685-C13212	C13212	Generalized Anxiety Disorder (GAD-7) - total score	Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Headache	Headache
F2610-C55004	C55004	Specimen centrifugation temperature value	The value related to temperature in a centrifuge	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2673-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2610-C56127	C56127	Other processing method performed indicator	The indicator relating to whether any other processing methods were performed	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2673-C15971	C15971	Headache warning symptom indicator	Indicator for any auras (warnings) that the headache was going to start	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C19027	C19027	Headache worst pain anatomic other text	The free-text field related to 'Headache worst pain anatomic site' specifying other text. Location of worst headache pain	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C56781	C56781	Headache re-start pain medication indicator	The indicator relating to whether the participant/subject took any pain medications for his/her re-started headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C15899	C15899	Headache worst pain anatomic site	Location of worst headache pain	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache

1122 results.

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.