CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2626-C16019	C16019	Family history relative first-degree affect count	The number of first-degree relatives affected with the medical condition	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2626-C16021	C16021	Family history second-degree relative affected count	The number of second-degree relatives affected with the medical condition	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2626-C16025	C16025	Family history second-degree physician diagnosis count	The number of second-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2626-C16207	C16207	Family history medical condition first-degree relative type	Relationship of the first-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2626-C16208	C16208	Family history medical condition second-degree relative type	Relationship of the second-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2626-C17992	C17992	Additional comment text	Text describing any additional information about the participant or the participant's family history	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2626-C19039	C19039	Headache migraine other text	The free-text field related to 'Headache migraine type' specifying other text. Type of headache or migraine	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2626-C56045	C56045	Headache migraine physician diagnosis medical documentation indicator	Indicator of whether the participant/subject has a physician diagnosis or medical documentation of headaches or migraines	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2626-C56046	C56046	Headache migraine participant affected condition indicator	Indicator of whether the participant/subject has been affected by their condition related to headaches or migraines	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2629-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C00721	C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant has had a history of the particular medical condition or health related event	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C08087	C08087	Sibling death age value	Age of sibling when he/she died	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C08147	C08147	Data source	Source of the data provided on the case report form	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C10813	C10813	Adopted indicator	Indicator of whether the participant was adopted	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C15997	C15997	Relative first degree total count	Count of the total number of first-degree relatives the participant/subject has	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C15998	C15998	Relative first degree live count	The total number of the participant/subject first-degree living relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C15999	C15999	Relative first degree decease count	The total number of the participant/subject first-degree deceased relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C16001	C16001	Relative second degree total count	The total number of the participant/subject second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C16002	C16002	Relative second degree live count	The total number of the participant/subject second-degree living relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C16003	C16003	Relative second degree decease count	The number of the participant/subject second-degree deceased relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C16006	C16006	Family history first-degree physician diagnosed count	The number of first-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C16012	C16012	Medical history condition diagnosis indicator	Indicator of whether the participant has been diagnosed with the medical condition/disease	Supplemental	Medical and Family History	False	Headache	Headache
F2629-C16019	C16019	Family history relative first-degree affect count	The number of first-degree relatives affected with the medical condition	Supplemental	Medical and Family History	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.