CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2610-C56127	C56127	Other processing method performed indicator	The indicator relating to whether any other processing methods were performed	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56128	C56128	Other processing method performed text	Text specifying any other processing methods that were performed	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56129	C56129	Specimen frozen indicator	The indicator relating to whether the specimen was frozen	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56130	C56130	Original specimen repeated refrozen rethawed indicator	The indicator relating to whether the original specimen has been repeatedly re-frozen or re-thawed	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56131	C56131	Frozen aliquot volume value	The value representing the volume of the frozen aliquot of the sample	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56133	C56133	Frozen aliquot volume unit of measure	The unit the frozen aliquot volume was measured in	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56134	C56134	Specimen freezing time	The time of specimen freezing	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56140	C56140	Assay sensitivity specificity value	The value of the assay sensitivity and specificity	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56141	C56141	Assay upper detection limit value	The value of the upper limit of detection of the assay	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56142	C56142	Assay lower detection limit value	The value of the lower limit of detection of the assay	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56143	C56143	Intra assay variability value	The value representing intra assay variability	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56144	C56144	Inter assay variability value	The value representing inter assay variability	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56145	C56145	Assay result type	The results obtained from the assay	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56146	C56146	Assay result other text	The free-text field describing another result from the assay	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56147	C56147	Headache free after specimen collection verified duration	The duration of time which the participant was verified to be headache-free after specimen collection	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56148	C56148	Headache type text	Text specifying the type of headache the participant/subject had, has, or is having	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56149	C56149	Headache treatment type	The type of treatment for the participant's headache	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56150	C56150	Headache treatment other text	The free-text field describing another type of headache treatment	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56151	C56151	Last cigarette smoked before sample collection time	The time since the participant last smoked a cigarette before sample collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2611-C10844	C10844	Gene type	The type of gene screened in the participant/subject for the disease or disorder	Supplemental	DNA Elements	False	Headache	Headache
F2611-C10845	C10845	Gene screened indicator	Indicator whether the participant/subject was screened for the specific gene mutation (e.g., Superoxide dismutase 1, Fused in sarcoma, TAR DNA binding protein) commonly seen in the disease or disorder	Supplemental	DNA Elements	False	Headache	Headache
F2611-C10846	C10846	Gene variant or mutation indicator	Indicator whether a variant or mutation was found in the common gene screened in the participant/subject for the disease or disorder	Supplemental	DNA Elements	False	Headache	Headache
F2611-C12231	C12231	Laboratory name	Name of laboratory where assessment was performed	Supplemental	DNA Elements	False	Headache	Headache
F2611-C15520	C15520	Genetic testing performed indicator	Indicator of whether the participant had genetic testing performed	Supplemental	DNA Elements	False	Headache	Headache
F2611-C15522	C15522	Headache gene present indicator	Indicator of whether a gene associated with headache was present after genetic testing	Supplemental	DNA Elements	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.