CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2610-C56087	C56087	Recreational substance dose	The dose of the recreational substance the participant uses	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56088	C56088	Recreational substance quantity value	The value representing the quantity of the recreational substance the participant uses	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56091	C56091	Postmenopausal last menstruation date	The date of the participant's last menstruation if she is postmenopausal	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56093	C56093	Specimen collected for biomarker indicator	The indicator relating to whether the participant had any specimen(s) collected for biomarkers	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56095	C56095	CSF time collection storage interval	The interval between the time CSF was collected and stored	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56096	C56096	Drink fluid last date and time	The date and time the participant last drank fluids	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56097	C56097	Blood time collection storage interval	The interval between the time blood was collected and stored	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56098	C56098	Sample temperature before centrifugation storage value	The temperature of the biomarker sample before centrifugation or storage	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56100	C56100	CSF time storage analysis interval	The interval of time between CSF storage and analysis	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56101	C56101	Blood time storage analysis interval	The interval of time between blood storage and analysis	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56102	C56102	Biomarker specimen type	The type of specimen or specimens collected from the participant/subject for biomarkers	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56106	C56106	Specimen blood collection type	The type of blood component that was collected	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56107	C56107	Biomarker specimen other text	The free-text field describing another type of specimen that was collected from the participant/subject	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56108	C56108	CSF specimen opening pressure value	The value of the opening pressure of the CSF specimen collected	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56109	C56109	CSF specimen amount taken value	The value of the amount of CSF that was collected from the participant/subject	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56111	C56111	Specimen centrifugation speed value	The speed at which the specimen was centrifuged	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56113	C56113	CSF specimen white blood cell count	The number of white blood cells (WBCs) counted in the participant's CSF specimen	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56114	C56114	CSF specimen red blood cell count	The number of red blood cells (RBCs) counted in the participant's CSF specimen	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56117	C56117	CSF specimen total protein value	The value representing the total protein found in the participant's CSF specimen	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56118	C56118	CSF specimen test for hemoglobin contaminant method text	Text describing the method of testing for hemoglobin contaminants in the participant's CSF specimen	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56120	C56120	CSF Specimen collection tube type	The type related to tube for CSF specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56121	C56121	CSF specimen collection tube other text	The free-text field related to other tube for CSF specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56123	C56123	Specimen centrifugation performed indicator	The indicator relating to whether centrifugation was performed on the specimen	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56125	C56125	Centrifugation substance added before after indicator	The indicator relating to whether any substances were added before or after centrifugation	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56126	C56126	Centrifugation substance added before after text	Text specifying the substance(s) added before or after centrifugation	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.