CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2610-C54753	C54753	Specimen collection tube type	Type of tube used for specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C54754	C54754	Specimen collection tube other text	The free-text field related to other tube for specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C55004	C55004	Specimen centrifugation temperature value	The value related to temperature in a centrifuge	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C55005	C55005	Specimen centrifugation duration	The duration related to centrifugation	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C55009	C55009	Specimen storage temperature value	The temperature value for the specimen being stored	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C55357	C55357	Microdialysis cerebral analyte glucose measurement	The value of glucose in in the cerebral microdialysis analyte	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C55382	C55382	Medication prescription type text	The free-text field related to type of prescription medication participant/subject	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56043	C56043	Headache migraine onset time	The time that the subject's headache started	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56053	C56053	Sample obtain with headache indicator	The indicator relating to the sample being obtained while the participant was having a headache	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56056	C56056	Sample collection headache diagnosis text	Text describing the headache diagnosis at the time of sample collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56057	C56057	Headache ictal indicator	The indicator relating to whether the headache was ictal	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56059	C56059	Headache 28 day prior sample collection rate	The rate of the participant's headaches during the 28 days prior to sample collection	Core	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56060	C56060	Timeframe window between medication change specimen collection duration	The timeframe window between medication changes and specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56063	C56063	Blood sample last acute abortive time	The time the last acute abortive was taken in relationship to the blood sample	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56064	C56064	Medication adjustment 5 half life text	Text describing any medications that have been adjusted or taken within 5 half lives of the biomarkers being assessed	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56067	C56067	Participant current smoker indicator	The indicator relating to whether the participant is a current smoker	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56071	C56071	Cigarette smoked past week count	The number of cigarettes the participant has smoked in the past week	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56072	C56072	Cigarette smoked past week unit of measure	The unit of measure pertaining to the amount of cigarettes the participant has smoked in the past week	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56075	C56075	Alcoholic drink consume past week count	The number of alcoholic drinks that were consumed within the past week	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56077	C56077	Prescription medication dose	The dose of the participant's prescription medication	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56079	C56079	Prescription medication quantity value	The value representing the quantity of the participant's prescription medication	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56080	C56080	Over the counter medication supplement name	The name of the participant's over-the-counter medication and/or supplements	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56081	C56081	Over the counter medication supplement dose	The dose of the participant's over-the-counter medication and/or supplements	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56082	C56082	Over the counter medication supplement quantity value	The value representing the quantity of the participant's over-the-counter medication and/or supplements	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56086	C56086	Recreational substance name	The name of the recreational substance the participant uses	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.