CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2490-C00703	C00703	Tobacco use started age value	Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Headache	Headache
F3059-C59671	C59671	Headache moderate before traumatic brain injury average monthly frequency	Average monthly frequency of headaches the participant/subject experienced with moderate severity prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2629-C56019	C56019	Sibling live count	The total number of alive siblings that the subject has	Supplemental	Medical and Family History	False	Headache	Headache
F2620-C15918	C15918	Quantitative sensory testing test methodology type	Type of methodology used for QST imaging	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15639	C15639	Imaging coordinate of significant cluster text	Text representing the coordinate of significant clusters	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2612-C55782	C55782	Imaging scanner software hardware update text	Text describing any scanner software or hardware updates during the time the study was performed	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2626-C16019	C16019	Family history relative first-degree affect count	The number of first-degree relatives affected with the medical condition	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2611-C15557	C15557	Gene detection method type	The method used to detect the gene mutation or variant	Supplemental	DNA Elements	False	Headache	Headache
F2491-C56617	C56617	Imaging magnetoencephalography coil configuration type	The type of coil configuration used for the MEG imaging	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2632-C18700	C18700	Imaging matrix size value other text	The free-text field related to 'Imaging matrix size value', specifying other text. Value representing the imaging matrix size in millimeters	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C59629	C59629	Headache inadequate treatment duration	Duration of participant's/subject's inadequately treated headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2622-C19018	C19018	Imaging transcranial magnetic stimulation current direction other text	The free-text field related to 'Imaging transcranial magnetic stimulation current direction type' specifying other text. The direction of current used during the test on the participant/subject, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2640-C15904	C15904	Body mass index measurement method type	Type of method used to calculate the participant/subject's body mass index (BMI)	Supplemental	Vital Signs	False	Headache	Headache
F2617-C16018	C16018	Pregnancy complication indicator	Indicator of whether the participant/subject had complications during the pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15576	C15576	Imaging diffusion b-value count	Count of b-values within the diffusion imaging study	Supplemental	Anatomical Imaging	False	Headache	Headache
F2621-C14117	C14117	School repeat grade indicator	Whether the participant/subject ever repeated a grade in school	Supplemental	Social Status	False	Headache	Headache
F2614-C59016	C59016	Imaging metabolite quantification procedure phantom data reference acquire indicator	Whether the phantom data was acquired for reference	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2610-C56088	C56088	Recreational substance quantity value	The value representing the quantity of the recreational substance the participant uses	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2491-C56664	C56664	Imaging safety monitor system used indicator	The indicator relating to whether a safety monitoring system was used during data acquisition	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2610-C10821	C10821	Food last consumed date and time	Date (and time, if applicable and known) the participant/subject last ate food	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2491-C56624	C56624	Imaging magnetoencephalography head movement tolerance other text	Text describing another head movement tolerance value used during MEG recording	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3060-C59637	C59637	Headache additional symptom type	Type of additional symptoms the participant/subject experienced with headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2622-C55791	C55791	Imaging transcranial magnetic stimulation effect measure type	The type of effect measure performed, as part of the Transcraniam Magnetic Stimulation (TMS) Imaging test	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2617-C16173	C16173	Pregnancy estimate delivery date and time	The date and time (if applicable) the participant is estimated to deliver the pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15611	C15611	Imaging standard average brain text	Text representing the standard average brain used	Supplemental	Anatomical Imaging	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.