CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2620-C58649	C58649	Quantitative sensory testing decrease stimulation rate unit of measure	The unit of measure for the rate of decrease of stimulation in quantitative sensory testing. Related to "Quantitative sensory testing decrease stimulation rate value"	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2610-C56079	C56079	Prescription medication quantity value	The value representing the quantity of the participant's prescription medication	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56077	C56077	Prescription medication dose	The dose of the participant's prescription medication	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2617-C16015	C16015	Prenatal testing type	The type of prenatal testing that was performed for the current pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16017	C16017	Prenatal testing result	Results of the selected prenatal testing type	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C19040	C19040	Prenatal testing other text	The free-text field related to 'Prenatal testing type' specifying other text. The type of prenatal testing that was performed for the current pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16016	C16016	Prenatal testing date and time	Date the selected prenatal testing type was performed for the current pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C17993	C17993	Prenatal test text	Text notes of any comments regarding the selected prenatal testing type	Supplemental	Pregnancy Information	False	Headache	Headache
F2610-C15618	C15618	Premenopausal indicator	Whether or not the participant/subject is currently in her premenopausal phase	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C15632	C15632	Premenarchal indicator	Whether the participant/subject is currently premenarchal, the period before a female's first menstrual cycle	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2617-C10556	C10556	Pregnant ever indicator	Indicator as to whether or not the participant/subject has every been pregnant, both term and not to term	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16028	C16028	Pregnancy prior history toxic exposure type	Type of any substances or radiation potentially harmful to the embryo or fetus to which the participant/subject has ever been exposed during pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C19044	C19044	Pregnancy prior history toxic exposure other text	The free-text field related to 'Pregnancy prior history toxic exposure type' specifying other text. Type of any substances or radiation potentially harmful to the embryo or fetus to which the participant/subject has ever been exposed during pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16027	C16027	Pregnancy prior history loss week count	Number of the week of pregnancy during which the stillbirth or miscarriage occurred	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16026	C16026	Pregnancy prior history loss indicator	Indicator of whether a miscarriage ( 20 weeks) occurred in any previous pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16023	C16023	Pregnancy prior history births pre-term count	Count of the total number of pregnancies the participant/subject carried for less than a full term (	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16022	C16022	Pregnancy prior history births full-term count	Count of the total number of pregnancies the participant/subject has carried for a full term (>= 37 weeks)	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C55934	C55934	Pregnancy prior history births count	Count of the total number of pregnancies, either full-term or pre-term, that the patient/subject has been through	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C17996	C17996	Pregnancy prior history birth defect text	Text of any comments about any birth defects that occurred during the participant/subject's previous pregnancies	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16024	C16024	Pregnancy prior history birth defect indicator	Indicator of whether a birth defect occurred in any of the participant/subject's previous pregnancies	Supplemental	Pregnancy Information	False	Headache	Headache
F2617-C16014	C16014	Pregnancy prenatal testing performed indicator	Indicator of whether prenatal testing was performed for the current pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2619-C16169	C16169	Pregnancy outcome type	Type of outcome of the pregnancy experienced by the participant or the pregnant individual (if the participant contributed sperm to the pregnancy)	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C16037	C16037	Pregnancy most recent live born infant indicator	Indicates whether the outcome of the participant/subject's most recent pregnancy was a live born infant?	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C17998	C17998	Pregnancy labor delivery complication specification text	Text about the participant/subject's experience with any complications during labor/delivery	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2619-C16046	C16046	Pregnancy labor delivery complication indicator	Indicator of whether there were complications during labor/delivery	Exploratory	Pregnancy Outcome	False	Headache	Headache

Displaying 126 - 150 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.