CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

1122 results.
Operations
Selected 22 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56093 Specimen collected for biomarker indicator

The indicator relating to whether the participant had any specimen(s) collected for biomarkers

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C56783 Headache re-start medication taken time

The time at which the participant/subject took the pain medication for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C07431 Patient Health Questionnaire (PHQ) - Depressed score

Score of how much the subject has been feeling down and depressed in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C15969 Headache or migraine medication taken type

Type of pain medication(s) taken by participant/subject

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C07440 Patient Health Questionnaire - (PHQ) - Depression questionnaire total score

Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C15980 Headache affected activity type

Types of school or other activities affected by the headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C56780 Headache reduce activity level indicator

The indicator relating to whether the participant/subject's headache reduced his/her activity level

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C13207 Generalized Anxiety Disorder (GAD-7) - worry too much scale

Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Headache Headache
C15939 Headache typical level activities affected result

Result of onset of headache in usually daily activities

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15961 Headache worse during activity indicator

Indicates whether activity or playing makes headache worse

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56130 Original specimen repeated refrozen rethawed indicator

The indicator relating to whether the original specimen has been repeatedly re-frozen or re-thawed

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C15976 Headache post initial study medication date and time

The actual time (24 hr clock) after taking initial study medication for headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C53077 Migraine headache light indicator

Indicator as to whether light bothers participant/subject when experiencing a migraine headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56784 Headache re-start medication taken other text

Text describing another type of pain medication taken by the participant/subject for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C07432 Patient Health Questionnaire (PHQ) - Sleep impairment score

Score of how much the subject has been bothered with troubling falling/staying asleep or sleeping too much in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C15971 Headache warning symptom indicator

Indicator for any auras (warnings) that the headache was going to start

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15966 Diary day headache indicator

Indicator of whether the participant/subject experienced a headache on a particular day

Supplemental-Highly Recommended Headache Calendar Headache Headache
C07441 Patient Health Questionnaire (PHQ) - Difficulty performing scale

The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C19027 Headache worst pain anatomic other text

The free-text field related to 'Headache worst pain anatomic site' specifying other text. Location of worst headache pain

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C56781 Headache re-start pain medication indicator

The indicator relating to whether the participant/subject took any pain medications for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C13208 Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale

Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7)

Supplemental-Highly Recommended Generalized Anxiety Disorder (GAD-7) Headache Headache
1122 results.

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.