CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1076 - 1100 of 1122

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2032-C07431	C07431	Patient Health Questionnaire (PHQ) - Depressed score	Score of how much the subject has been feeling down and depressed in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2032-C07440	C07440	Patient Health Questionnaire - (PHQ) - Depression questionnaire total score	Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2684-C15971	C15971	Headache warning symptom indicator	Indicator for any auras (warnings) that the headache was going to start	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2624-C15966	C15966	Diary day headache indicator	Indicator of whether the participant/subject experienced a headache on a particular day	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2684-C19027	C19027	Headache worst pain anatomic other text	The free-text field related to 'Headache worst pain anatomic site' specifying other text. Location of worst headache pain	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2684-C56781	C56781	Headache re-start pain medication indicator	The indicator relating to whether the participant/subject took any pain medications for his/her re-started headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2673-C56785	C56785	Headache premonitory symptom type	The type of premonitory symptom(s) (symptoms that come before headache) that the participant/subject experienced	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C15893	C15893	Headache retire bed indicator	Indicates whether the participant/subject went to bed with the headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C15962	C15962	Headache affect activity level indicator	Indicates whether the headache changes activity level (i.e., stop playing)	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C15977	C15977	Headache end date and time	The time of the day the headache ended	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2610-C56102	C56102	Biomarker specimen type	The type of specimen or specimens collected from the participant/subject for biomarkers	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2673-C56777	C56777	Headache start date and time	The time at which the participant/subject's headache started	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2685-C13209	C13209	Generalized Anxiety Disorder (GAD-7) - restless scale	Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Headache	Headache
F2032-C07432	C07432	Patient Health Questionnaire (PHQ) - Sleep impairment score	Score of how much the subject has been bothered with troubling falling/staying asleep or sleeping too much in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2032-C07441	C07441	Patient Health Questionnaire (PHQ) - Difficulty performing scale	The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2684-C15972	C15972	Headache aura symptom type	Type of aura (warning) that a headache was going to start	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2624-C15967	C15967	Diary day migraine indicator	Indicator of whether the participant/subject thought the headache was a migraine	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2684-C19032	C19032	Headache typical pain other text	The free-text field related to 'Headache typical pain type' specifying other text. Type of pain the participant/subject experiences with the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2684-C56782	C56782	Headache re-start medication taken type	Type of pain medication(s) taken by participant/subject for his/her re-started headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2684-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2610-C55009	C55009	Specimen storage temperature value	The temperature value for the specimen being stored	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C56129	C56129	Specimen frozen indicator	The indicator relating to whether the specimen was frozen	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2673-C15897	C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C15966	C15966	Diary day headache indicator	Indicator of whether the participant/subject experienced a headache on a particular day	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2610-C56093	C56093	Specimen collected for biomarker indicator	The indicator relating to whether the participant had any specimen(s) collected for biomarkers	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache

Displaying 1076 - 1100 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.