CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1051 - 1075 of 1122

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Headache	Headache
F2685-C13209	C13209	Generalized Anxiety Disorder (GAD-7) - restless scale	Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Headache	Headache
F2032-C07438	C07438	Patient Health Questionnaire (PHQ) - Movement speech impairment score	Score of how much the subject has been suffering with moving or speaking too slowly in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2684-C15972	C15972	Headache aura symptom type	Type of aura (warning) that a headache was going to start	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2624-C15967	C15967	Diary day migraine indicator	Indicator of whether the participant/subject thought the headache was a migraine	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2610-C56129	C56129	Specimen frozen indicator	The indicator relating to whether the specimen was frozen	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2673-C15978	C15978	Headache re-start date and time	The time of the day (24 hr clock) that the headache restarted	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C56778	C56778	Headache pain hurt most eye type	The eye that hurts the most due to headache pain	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2610-C56093	C56093	Specimen collected for biomarker indicator	The indicator relating to whether the participant had any specimen(s) collected for biomarkers	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2673-C15897	C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C15966	C15966	Diary day headache indicator	Indicator of whether the participant/subject experienced a headache on a particular day	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2610-C55009	C55009	Specimen storage temperature value	The temperature value for the specimen being stored	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2684-C19034	C19034	Headache or migraine medication taken other text	The free-text field related to 'Headache or migraine medication taken type' specifying other text. Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2684-C56783	C56783	Headache re-start medication taken time	The time at which the participant/subject took the pain medication for his/her re-started headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2685-C13210	C13210	Generalized Anxiety Disorder (GAD-7) - easily annoyed scale	Scale describing how often participant/subject becomes easily annoyed or irritable, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Headache	Headache
F2032-C07430	C07430	Patient Health Questionnaire (PHQ) - Little interest score	Score of how much the subject has been bothered by having little interest or pleasure in doing things in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2032-C07439	C07439	Patient Health Questionnaire (PHQ) - Better dead thought score	Score of how much the subject has been suffering with the thoughts of that he/she would be better off dead to hurt, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2684-C15950	C15950	Headache typical pain type	Type of pain the participant/subject experiences with the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2684-C15975	C15975	Headache post initial study medication time interval	The time interval after taking initial study medication for headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2624-C22804	C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2673-C15967	C15967	Diary day migraine indicator	Indicator of whether the participant/subject thought the headache was a migraine	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2610-C56130	C56130	Original specimen repeated refrozen rethawed indicator	The indicator relating to whether the original specimen has been repeatedly re-frozen or re-thawed	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2673-C15979	C15979	Headache re-start end date and time	The time of the day (24 hr clock) that the headache ended after headache restarted	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2673-C56779	C56779	Headache sound aggravate indicator	The indicator relating to whether sound aggravates the participant/subject or makes his/her headache worse	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache

Displaying 1051 - 1075 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.