CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1051 - 1075 of 1122
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56056 Sample collection headache diagnosis text

Text describing the headache diagnosis at the time of sample collection

Supplemental Biospecimens Collection and Processing Headache Headache
C56053 Sample obtain with headache indicator

The indicator relating to the sample being obtained while the participant was having a headache

Supplemental Biospecimens Collection and Processing Headache Headache
C56098 Sample temperature before centrifugation storage value

The temperature of the biomarker sample before centrifugation or storage

Supplemental Biospecimens Collection and Processing Headache Headache
C14117 School repeat grade indicator

Whether the participant/subject ever repeated a grade in school

Supplemental Social Status Headache Headache
C59646 Sensitivity to light without headache frequency category

Category that describes how frequently the headache associated symptom of sensitivity to light effects the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59647 Sensitivity to sound without headache frequency category

Category that describes how frequently the headache associated symptom of sensitivity to sound effects the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C19330 Sensory evoked potential stimulation count

The number of stimulations in sensory evoked potential

Supplemental Functional Magnetic Resonance Imaging (fMRI) Headache Headache
C55904 Sex at birth other text

Text describing another variety of the subject's self-proclaimed sex at his/her birth

Supplemental Demographics Headache Headache
C55577 Sex at Birth Type

Self-reported sex of the participant/subject at birth

Supplemental Demographics Headache Headache
C55578 Sexual orientation type

Self-reported sexual orientation of the participant/subject

Supplemental Demographics Headache Headache
C56028 Sibling count

The total number of siblings the subject has

Supplemental Medical and Family History Headache Headache
C08087 Sibling death age value

Age of sibling when he/she died

Supplemental Medical and Family History Headache Headache
C56021 Sibling decease count

The total number of deceased siblings that the subject has

Supplemental Medical and Family History Headache Headache
C56022 Sibling decease count unknown indicator

The indicator relating to whether or not the subject knows how many deceased siblings he/she has

Supplemental Medical and Family History Headache Headache
C56023 Sibling decease primary cause text

Text describing the primary cause of the subject's sibling's death

Supplemental Medical and Family History Headache Headache
C56019 Sibling live count

The total number of alive siblings that the subject has

Supplemental Medical and Family History Headache Headache
C56020 Sibling live count unknown indicator

The indicator relating to whether or not the subject knows how many living siblings he/she has

Supplemental Medical and Family History Headache Headache
C14124 Social security number

A nine-digit number issued to U.S. citizens, permanent residents, and temporary (working) residents under section 205(c)(2) of the Social Security Act, codified as 42 U.S.C. § 405(c)(2). The number is issued to an individual by the Social Security Administration, an independent agency of the United States government

Supplemental Demographics Headache Headache
C59679 Sound sensitive without headache indicator

Indicator of whether participant/subject experienced sensitivity to sound without a headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C56106 Specimen blood collection type

The type of blood component that was collected

Supplemental Biospecimens Collection and Processing Headache Headache
C55005 Specimen centrifugation duration

The duration related to centrifugation

Supplemental Biospecimens Collection and Processing Headache Headache
C56123 Specimen centrifugation performed indicator

The indicator relating to whether centrifugation was performed on the specimen

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C56111 Specimen centrifugation speed value

The speed at which the specimen was centrifuged

Supplemental Biospecimens Collection and Processing Headache Headache
C55004 Specimen centrifugation temperature value

The value related to temperature in a centrifuge

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
C56093 Specimen collected for biomarker indicator

The indicator relating to whether the participant had any specimen(s) collected for biomarkers

Supplemental-Highly Recommended Biospecimens Collection and Processing Headache Headache
Displaying 1051 - 1075 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.