CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 926 - 950 of 1122
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C07441 Patient Health Questionnaire (PHQ) - Difficulty performing scale

The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C07436 Patient Health Questionnaire (PHQ) - Feeling failure score

Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C07430 Patient Health Questionnaire (PHQ) - Little interest score

Score of how much the subject has been bothered by having little interest or pleasure in doing things in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C07438 Patient Health Questionnaire (PHQ) - Movement speech impairment score

Score of how much the subject has been suffering with moving or speaking too slowly in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C07432 Patient Health Questionnaire (PHQ) - Sleep impairment score

Score of how much the subject has been bothered with troubling falling/staying asleep or sleeping too much in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C07433 Patient Health Questionnaire (PHQ) - Tired little energy score

Score of how much the subject has been feeling tired in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C07440 Patient Health Questionnaire - (PHQ) - Depression questionnaire total score

Total score of the questionnaire, as the part of Patient Health Questionnaire Depression (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Headache Headache
C56009 Perceived Stress Scale (PSS) - Confident handle personal problem scale

Scale of how often in the last month that the participant/subject has felt confident in his or her ability to handle his or her personal problems

Supplemental Behavioral History Headache Headache
C56011 Perceived Stress Scale (PSS) - Difficulty piling up unable overcome scale

Scale of how often in the last month that the participant/subject has felt that difficulties were piling up so high that he or she could not overcome them

Supplemental Behavioral History Headache Headache
C56010 Perceived Stress Scale (PSS) - Thing going your way scale

Scale of how often in the last month that the participant/subject has felt that things were going his or her way

Supplemental Behavioral History Headache Headache
C56008 Perceived Stress Scale (PSS) - Unable control important thing life scale

Scale of how often in the last month that the participant/subject has felt that he or she was unable to control the important things in his/her life

Supplemental Behavioral History Headache Headache
C13997 PET localization distribution pattern type

General pattern of tracer binding/uptake based on the Positron Emission Tomography (PET) scan

Supplemental Positron Emission Tomography Localization (PET) Headache Headache
C13995 PET localization rating type

Localization rating indicator of imaging using positron emission tomography (PET)

Supplemental Positron Emission Tomography Localization (PET) Headache Headache
C13999 PET localization study type

The PET localization study conclusion

Supplemental Positron Emission Tomography Localization (PET) Headache Headache
C13996 PET localization uptake type

Indicates the degree of absorption or level of ligand tracer binding in the brain scan

Supplemental Positron Emission Tomography Localization (PET) Headache Headache
C16050 Phenotypic sex child type

Sex of the participant/subject's child based on physical examination

Exploratory Pregnancy Outcome Headache Headache
C01014 Physical exam abnormality significance type

An indication if the physical exam abnormality in a specific body system is clinically significant

Supplemental Physical Exam Headache Headache
C01012 Physical exam body system result type

Assessment result of each body system examined

Supplemental Physical Exam Headache Headache
C01028 Physical exam condition SNOMED CT code

Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)

Supplemental Physical Exam Headache Headache
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

Supplemental Physical Exam Headache Headache
C01013 Physical exam description text

Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined

Supplemental Physical Exam Headache Headache
C01015 Physical exam performed indicator

Indicator of whether a physical exam was performed on the participant/subject

Supplemental Physical Exam Headache Headache
C56034 Pittsburgh Sleep Quality Index (PSQI) - Asleep past month hour duration

The duration of time (in hours) the subject was asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Behavioral History Headache Headache
C56029 Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month length value

The value of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Behavioral History Headache Headache
C56031 Pittsburgh Sleep Quality Index (PSQI) - Get up morning past month time

The time at which the subject got up in the morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Behavioral History Headache Headache
Displaying 926 - 950 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.