CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2639-C00021	C00021	Ethnicity USA paternal category	Ethnicity the participant/subject's father most closely identifies with	Supplemental	Demographics	False	Headache	Headache
F2629-C56022	C56022	Sibling decease count unknown indicator	The indicator relating to whether or not the subject knows how many deceased siblings he/she has	Supplemental	Medical and Family History	False	Headache	Headache
F3059-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2620-C15922	C15922	Quantitative sensory testing maximum stimulus duration	Maximum duration of stimuli used during the testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15643	C15643	Imaging statistical group analysis test text	Statistical tests used for group analysis	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2613-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Concomitant Medications	False	Headache	Headache
F2626-C16207	C16207	Family history medical condition first-degree relative type	Relationship of the first-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2492-C56747	C56747	Cortical evoked potential somatosensory stimulus anatomic site	The anatomic site at which the somatosensory stimulus was administered for the recording of the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2611-C19013	C19013	Gene unclassified variant shown specify text	The free-text field related to 'Gene unclassified variant shown indicator'. Indicator of whether an unclassified variant shown	Supplemental	DNA Elements	False	Headache	Headache
F2490-C56031	C56031	Pittsburgh Sleep Quality Index (PSQI) - Get up morning past month time	The time at which the subject got up in the morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Behavioral History	False	Headache	Headache
F2491-C56720	C56720	Imaging magnetoencephalography waveform latency amplitude habituation result	Results of waveform latency/amplitude/habituation measures/comparison of the magnetoencephalography (MEG) study	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2610-C56118	C56118	CSF specimen test for hemoglobin contaminant method text	Text describing the method of testing for hemoglobin contaminants in the participant's CSF specimen	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2621-C15988	C15988	Employment paid job count	The number of paid jobs the participant/subject has	Supplemental	Social Status	False	Headache	Headache
F2615-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2491-C56682	C56682	Imaging magnetoencephalography high pass filter value	The value of the high-pass filter used for magnetoencephalography (MEG)	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2491-C56642	C56642	Imaging magnetoencephalography channel group other text	Text describing another channel group used for MEG recording	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3060-C59640	C59640	Headache additional symptom unilateral same side present indicator	Indicator of whether the participant's/subject's symptom is present on the same side to the headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2617-C17994	C17994	Pregnancy complication text	Text specifying any complications the participant/subject experienced during this pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15633	C15633	Imaging volumetric result	Results of volumetric measures/comparison of the image study	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2621-C15996	C15996	Caretaker of child type	Indicates who takes care of the child or adolescent	Supplemental	Social Status	False	Headache	Headache
F2615-C15544	C15544	Imaging stimulation intensity value	Stimulation intensity used on imaging	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2630-C18711	C18711	Imaging radioligand type other text	The free-text field related to 'Imaging radioligand type' specifying other text. Isotope-labeled bioactive compound (generic or common name) used in the imaging scan	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2491-C56690	C56690	Imaging magnetoencephalography epileptic spike wave discharge type	The type of epileptic spike(s)/spike-wave-discharges (SWD) seen during magnetoencephalography (MEG) processing and analysis	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2610-C56060	C56060	Timeframe window between medication change specimen collection duration	The timeframe window between medication changes and specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.