CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2619-C16046	C16046	Pregnancy labor delivery complication indicator	Indicator of whether there were complications during labor/delivery	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2622-C55776	C55776	Imaging ictal headache since onset duration	The duration of time since the onset of the subject's headache if it was ictal	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2617-C16024	C16024	Pregnancy prior history birth defect indicator	Indicator of whether a birth defect occurred in any of the participant/subject's previous pregnancies	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15594	C15594	Imaging distortions quality method name	Description of image quality image distortion monitoring method used	Supplemental	Anatomical Imaging	False	Headache	Headache
F3059-C59682	C59682	Gait posture imbalance without headache indicator	Indicator of whether participant/subject experienced gait and/or postural imbalance without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2621-C15989	C15989	Unemployed reason	Participant's/subject's reason for unemployment	Supplemental	Social Status	False	Headache	Headache
F2639-C08088	C08088	Age value unit of measure	Unit of measure used to initially record the age value	Supplemental	Demographics	False	Headache	Headache
F2615-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2610-C56080	C56080	Over the counter medication supplement name	The name of the participant's over-the-counter medication and/or supplements	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2491-C56659	C56659	General anesthesia time	The time the general anesthesia was given to the patient	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C56771	C56771	Cortical evoked potential steady-state time frequency amplitude measurement	The measurement of the amplitude of the steady-state evoked potential, as part of the time-frequency analysis performed	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F3060-C59641	C59641	Headache aura occurrence indicator	Indicator of whether the participant/subject has an aura occur with headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2491-C56619	C56619	Imaging magnetoencephalography scanner manufacturer name	The name of the MEG scanner manufacturer	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2617-C17995	C17995	Pregnancy infection illness text	Text specifying any infections or illnesses the participant/subject experienced during this pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15636	C15636	Imaging comparison P-values number	P-values used for comparisons between cohorts or the group averages	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C15950	C15950	Headache typical pain type	Type of pain the participant/subject experiences with the headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2621-C17985	C17985	Military rank enlisted rank other text	Text specifying enlisted ranks other than field grade officer or above, company grade officer, warrant officer, or non-commissioned officer	Supplemental	Social Status	False	Headache	Headache
F2639-C55577	C55577	Sex at Birth Type	Self-reported sex of the participant/subject at birth	Supplemental	Demographics	False	Headache	Headache
F2615-C15551	C15551	Imaging evoked potential stimulus type	Type of stimulus used on participant/subject as part of the Blink Reflex and Evoked Potential Imaging test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2630-C18716	C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2620-C18024	C18024	Temperature skin unit of measure	The units of measure for participant/subject's baseline skin temperature	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2610-C56095	C56095	CSF time collection storage interval	The interval between the time CSF was collected and stored	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2491-C56667	C56667	Imaging magnetoencephalography scanner data format exported other text	Text specifying any other data format(s) exported from the MEG scanner to local workstations/computers	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2610-C15607	C15607	Medication history change indicator	Whether or not the participant/subject had a change in his or her medication around the time of specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F3060-C59649	C59649	Dizziness vertigo without headache frequency category	Category that describes how frequently the headache associated symptom of dizziness and/or vertigo affects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.