CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2612-C15568	C15568	Imaging post-processing method name	Method used for image post-processing	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2625-C56068	C56068	Migraine without aura meet International Classification of Headache Disorders criteria indicator	Indicator related to whether or not the patient/subject's condition meets the criteria of being a migraine without aura based on International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2492-C56729	C56729	Cortical evoked potential stimulation parameter visual type	The type of visual stimulation parameter used to record evoked potentials	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2618-C05122	C05122	Study therapy administered date and time	Date (and time, if applicable and known) the study therapy was administered to the participant/subject	Supplemental	Rescue Treatments	False	Headache	Headache
F2491-C56702	C56702	Imaging magnetoencephalography processing tool package type	The processing tool(s)/package(s) used for analyzing the magnetoencephalography (MEG) data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3059-C59664	C59664	Headache after traumatic brain injury change indicator	Indicator of whether the participant's/subject's headaches after a traumatic brain injury changed followingf the TBI	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2491-C56696	C56696	Imaging magnetoencephalography integration structural imaging source other text	Text describing another structural imaging source used for integration of MEG and other anatomical imaging	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2634-C56608	C56608	Imaging evoked functional scan stimulation type	The type of stimulation used for the patient's evoked functional scan, if applicable	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2629-C17990	C17990	Relative second degree live count unknown indicator	Indicator of the unknown number of living second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2491-C56656	C56656	Imaging magnetoencephalography magnetic shielded room person count	The number of persons accompanying the examiner in the magnetic shielding room, if applicable	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2620-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15611	C15611	Imaging standard average brain text	Text representing the standard average brain used	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2612-C55775	C55775	Imaging ictal pain intensity value	The value related to the intensity of the subject's pain if the timing is ictal	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2625-C56112	C56112	Chronic migraine fulfill further International Classification of Headache Disorders criteria type	Type of further criteria the patient/subject's headaches fulfill, on =8 days per month for >3 months from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2492-C56737	C56737	Cortical evoked potential contrast percentage value	The contrast between the dark and bright portions of a pattern seen in the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2618-C56042	C56042	Headache severity scale	The scale of the amount of headache the participant/subject is experiencing	Supplemental	Rescue Treatments	False	Headache	Headache
F2611-C12231	C12231	Laboratory name	Name of laboratory where assessment was performed	Supplemental	DNA Elements	False	Headache	Headache
F2491-C56710	C56710	Imaging magnetoencephalography topographic distribution type	The type of topographic distribution used for analysis of the magnetoencephalography (MEG) data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3059-C59672	C59672	Headache severe before traumatic brain injury average monthly frequency	Average monthly frequency of headaches the participant/subject experienced with severe severity prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2639-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Demographics	False	Headache	Headache
F2629-C56020	C56020	Sibling live count unknown indicator	The indicator relating to whether or not the subject knows how many living siblings he/she has	Supplemental	Medical and Family History	False	Headache	Headache
F2491-C56664	C56664	Imaging safety monitor system used indicator	The indicator relating to whether a safety monitoring system was used during data acquisition	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2620-C15920	C15920	Quantitative sensory testing test equipment text	Description of equipment used for testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15640	C15640	Imaging corrective analysis P-values number	P-values used for any corrective analysis	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2613-C02002	C02002	Medication prior or concomitant use indicator	Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol	Supplemental	Concomitant Medications	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.