CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 351 - 375 of 1122
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56784 Headache re-start medication taken other text

Text describing another type of pain medication taken by the participant/subject for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56783 Headache re-start medication taken time

The time at which the participant/subject took the pain medication for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56783 Headache re-start medication taken time

The time at which the participant/subject took the pain medication for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C56782 Headache re-start medication taken type

Type of pain medication(s) taken by participant/subject for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56782 Headache re-start medication taken type

Type of pain medication(s) taken by participant/subject for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C56781 Headache re-start pain medication indicator

The indicator relating to whether the participant/subject took any pain medications for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56781 Headache re-start pain medication indicator

The indicator relating to whether the participant/subject took any pain medications for his/her re-started headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C56780 Headache reduce activity level indicator

The indicator relating to whether the participant/subject's headache reduced his/her activity level

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56780 Headache reduce activity level indicator

The indicator relating to whether the participant/subject's headache reduced his/her activity level

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15893 Headache retire bed indicator

Indicates whether the participant/subject went to bed with the headache

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15893 Headache retire bed indicator

Indicates whether the participant/subject went to bed with the headache

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C59620 Headache severe average monthly frequency

Frequency of the average monthly headaches the participant/subject experienced with severe severity

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59672 Headache severe before traumatic brain injury average monthly frequency

Average monthly frequency of headaches the participant/subject experienced with severe severity prior to traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C15604 Headache severity prior sample collection score

The score rating of the severity of the participant/subject's last headache prior to sample collection

Supplemental Biospecimens Collection and Processing Headache Headache
C56042 Headache severity scale

The scale of the amount of headache the participant/subject is experiencing

Supplemental-Highly Recommended Headache Calendar Headache Headache
C56042 Headache severity scale

The scale of the amount of headache the participant/subject is experiencing

Supplemental Rescue Treatments Headache Headache
C56779 Headache sound aggravate indicator

The indicator relating to whether sound aggravates the participant/subject or makes his/her headache worse

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C56779 Headache sound aggravate indicator

The indicator relating to whether sound aggravates the participant/subject or makes his/her headache worse

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C56777 Headache start date and time

The time at which the participant/subject's headache started

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C56777 Headache start date and time

The time at which the participant/subject's headache started

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C59668 Headache symptom change after traumatic brain injury type

Type of headache symptoms experienced by the participant/subject following traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59612 Headache traumatic brain injury onset delay duration category

Category which represents how long after the participant's/subject's traumatic brain injury that their headaches began

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59607 Headache traumatic brain injury previous count

Count of previous traumatic brain injuries not including the current event experienced by the participant/subject that led to the current post traumatic headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C56150 Headache treatment other text

The free-text field describing another type of headache treatment

Exploratory Biospecimens Collection and Processing Headache Headache
C56149 Headache treatment type

The type of treatment for the participant's headache

Exploratory Biospecimens Collection and Processing Headache Headache
Displaying 351 - 375 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.