CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 301 - 325 of 1122
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59630 Headache laterality anatomic site

Anatomic site location of the headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59630 Headache laterality anatomic site

Anatomic site location of the headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59631 Headache laterality type

Type of side were headache is located

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59631 Headache laterality type

Type of side were headache is located

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59617 Headache less than 30 day ratio value

Value which represents the headache ratio calculation. Value calculated by dividing the response from Q (a) by Q (b) and multiplying by 100. Applies only to patients that have had post traumatic headache for less than 30 days

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59632 Headache maximum pain intensity scale

Rating scale of the maximum headache pain intensity described by the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59632 Headache maximum pain intensity scale

Rating scale of the maximum headache pain intensity described by the participant/subject

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C16010 Headache migraine diagnosis indicator

Indicator of whether the participant/subject has been diagnosed with the type of headache or migraine

Supplemental Medical and Family History of Headache/Migraine Headache Headache
C56044 Headache migraine end time

The time that the subject's headache ended

Supplemental-Highly Recommended Headache Calendar Headache Headache
C56043 Headache migraine onset time

The time that the subject's headache started

Exploratory Biospecimens Collection and Processing Headache Headache
C56043 Headache migraine onset time

The time that the subject's headache started

Supplemental-Highly Recommended Headache Calendar Headache Headache
C19039 Headache migraine other text

The free-text field related to 'Headache migraine type' specifying other text. Type of headache or migraine

Supplemental Medical and Family History of Headache/Migraine Headache Headache
C56046 Headache migraine participant affected condition indicator

Indicator of whether the participant/subject has been affected by their condition related to headaches or migraines

Supplemental Medical and Family History of Headache/Migraine Headache Headache
C56045 Headache migraine physician diagnosis medical documentation indicator

Indicator of whether the participant/subject has a physician diagnosis or medical documentation of headaches or migraines

Supplemental Medical and Family History of Headache/Migraine Headache Headache
C56041 Headache migraine rescue device used end date

The end date on which the rescue device was used in the treatment of headache or migraine

Supplemental Rescue Treatments Headache Headache
C56039 Headache migraine rescue device used name

The name of the rescue device used in the treatment of headache or migraine

Supplemental Rescue Treatments Headache Headache
C56040 Headache migraine rescue device used start date

The start date on which the rescue device was used in the treatment of headache or migraine

Supplemental Rescue Treatments Headache Headache
C16005 Headache migraine type

Type of headache or migraine

Supplemental Medical and Family History of Headache/Migraine Headache Headache
C59618 Headache mild average monthly frequency

Frequency of the average monthly headaches the participant/subject experienced with mild severity

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59670 Headache mild before traumatic brain injury average monthly frequency

Average monthly frequency of headaches the participant/subject experienced with mild severity prior to traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59619 Headache moderate average monthly frequency

Frequency of the average monthly headaches the participant/subject experienced with moderate severity

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59671 Headache moderate before traumatic brain injury average monthly frequency

Average monthly frequency of headaches the participant/subject experienced with moderate severity prior to traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C19034 Headache or migraine medication taken other text

The free-text field related to 'Headache or migraine medication taken type' specifying other text. Type of pain medication(s) taken by participant/subject

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C19034 Headache or migraine medication taken other text

The free-text field related to 'Headache or migraine medication taken type' specifying other text. Type of pain medication(s) taken by participant/subject

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15969 Headache or migraine medication taken type

Type of pain medication(s) taken by participant/subject

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
Displaying 301 - 325 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.