CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 301 - 325 of 1122

« first
‹ previous
…
9
10
11
12
13
14
15
16
17
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3060-C59630	C59630	Headache laterality anatomic site	Anatomic site location of the headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59630	C59630	Headache laterality anatomic site	Anatomic site location of the headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59631	C59631	Headache laterality type	Type of side were headache is located	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59631	C59631	Headache laterality type	Type of side were headache is located	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59617	C59617	Headache less than 30 day ratio value	Value which represents the headache ratio calculation. Value calculated by dividing the response from Q (a) by Q (b) and multiplying by 100. Applies only to patients that have had post traumatic headache for less than 30 days	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3060-C59632	C59632	Headache maximum pain intensity scale	Rating scale of the maximum headache pain intensity described by the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59632	C59632	Headache maximum pain intensity scale	Rating scale of the maximum headache pain intensity described by the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2626-C16010	C16010	Headache migraine diagnosis indicator	Indicator of whether the participant/subject has been diagnosed with the type of headache or migraine	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2624-C56044	C56044	Headache migraine end time	The time that the subject's headache ended	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2624-C56043	C56043	Headache migraine onset time	The time that the subject's headache started	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2610-C56043	C56043	Headache migraine onset time	The time that the subject's headache started	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2626-C19039	C19039	Headache migraine other text	The free-text field related to 'Headache migraine type' specifying other text. Type of headache or migraine	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2626-C56046	C56046	Headache migraine participant affected condition indicator	Indicator of whether the participant/subject has been affected by their condition related to headaches or migraines	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2626-C56045	C56045	Headache migraine physician diagnosis medical documentation indicator	Indicator of whether the participant/subject has a physician diagnosis or medical documentation of headaches or migraines	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2618-C56041	C56041	Headache migraine rescue device used end date	The end date on which the rescue device was used in the treatment of headache or migraine	Supplemental	Rescue Treatments	False	Headache	Headache
F2618-C56039	C56039	Headache migraine rescue device used name	The name of the rescue device used in the treatment of headache or migraine	Supplemental	Rescue Treatments	False	Headache	Headache
F2618-C56040	C56040	Headache migraine rescue device used start date	The start date on which the rescue device was used in the treatment of headache or migraine	Supplemental	Rescue Treatments	False	Headache	Headache
F2626-C16005	C16005	Headache migraine type	Type of headache or migraine	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F3060-C59618	C59618	Headache mild average monthly frequency	Frequency of the average monthly headaches the participant/subject experienced with mild severity	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59670	C59670	Headache mild before traumatic brain injury average monthly frequency	Average monthly frequency of headaches the participant/subject experienced with mild severity prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F3060-C59619	C59619	Headache moderate average monthly frequency	Frequency of the average monthly headaches the participant/subject experienced with moderate severity	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59671	C59671	Headache moderate before traumatic brain injury average monthly frequency	Average monthly frequency of headaches the participant/subject experienced with moderate severity prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2673-C19034	C19034	Headache or migraine medication taken other text	The free-text field related to 'Headache or migraine medication taken type' specifying other text. Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C19034	C19034	Headache or migraine medication taken other text	The free-text field related to 'Headache or migraine medication taken type' specifying other text. Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2673-C15969	C15969	Headache or migraine medication taken type	Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache

Displaying 301 - 325 of 1122

« first
‹ previous
…
9
10
11
12
13
14
15
16
17
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.