CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 1122
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15943 Headache average days per month count

Actual number of headache days per month the participant/subject had in the past 3 months

Supplemental Migraine Diagnosis Questionnaire Headache Headache
C59673 Headache before traumatic brain injury complete freedom monthly day count

Count of monthly frequency of complete freedom from headache the participant/subject experienced prior to traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59674 Headache before traumatic brain injury continuous indicator

Indicator of whether headaches experienced by the participant/subject were continuous prior to traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59659 Headache before traumatic brain injury history indicator

Indicator of whether the participant/subject had experienced headaches prior to traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59669 Headache before traumatic brain injury monthly frequency

Frequency of monthly headaches the participant/subject experienced prior to traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59675 Headache before traumatic brain injury noncontinuous inadequate treatment duration

Duration of participant/subject's inadequately treated noncontinuous headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59655 Headache category

Type of headache experienced by the participant/subject

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59655 Headache category

Type of headache experienced by the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59656 Headache category other text

The free-text field related to 'Headache category' specifying other text

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59656 Headache category other text

The free-text field related to 'Headache category' specifying other text

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59614 Headache continuous indicator

Indicator of whether the participant's/subject's headaches have been continuous

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59633 Headache current pain scale

Scale for the current pain of this headache on a scale of 0-10

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59615 Headache day per month frequency

Frequency of headaches the participant/subject experienced within the last 30 days

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59616 Headache day since onset count

Count of days passed since participant's/subject's onset of post traumatic headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59628 Headache days per month count

Count of the number of days the participant/subject experienced headaches in a month

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59626 Headache days per week count

Count of days the participant/subject experienced headaches in a week

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C15977 Headache end date and time

The time of the day the headache ended

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15977 Headache end date and time

The time of the day the headache ended

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15977 Headache end date and time

The time of the day the headache ended

Exploratory Biospecimens Collection and Processing Headache Headache
C59663 Headache first date

Date of the participant's/subject's first headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C56147 Headache free after specimen collection verified duration

The duration of time which the participant was verified to be headache-free after specimen collection

Exploratory Biospecimens Collection and Processing Headache Headache
C15522 Headache gene present indicator

Indicator of whether a gene associated with headache was present after genetic testing

Supplemental DNA Elements Headache Headache
C15936 Headache history indicator

Indicates whether participant/subject suffers from headaches

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C56057 Headache ictal indicator

The indicator relating to whether the headache was ictal

Supplemental Biospecimens Collection and Processing Headache Headache
C59629 Headache inadequate treatment duration

Duration of participant's/subject's inadequately treated headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
Displaying 276 - 300 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.