CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 1122
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59684 Aura without headache indicator

Indicator of whether participant/subject experienced an aura without a headache

 Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire False Headache Headache
C00714 Behavioral history assessment date and time

Date (and time, if applicable and known) the participant/subject behavioral history was taken

 Supplemental Behavioral History False Headache Headache
C56107 Biomarker specimen other text

The free-text field describing another type of specimen that was collected from the participant/subject

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56102 Biomarker specimen type

The type of specimen or specimens collected from the participant/subject for biomarkers

 Supplemental-Highly Recommended Biospecimens Collection and Processing False Headache Headache
C16049 Birth child date and time

Date of birth of participant/subject's most recent live birth

 Exploratory Pregnancy Outcome False Headache Headache
C16008 Birth control indicator

Indicates if participant uses birth control

 Supplemental Pregnancy Information False Headache Headache
C16009 Birth control last used date and time

Date (and time, if applicable and known) birth control was last used

 Supplemental Pregnancy Information False Headache Headache
C10981 Birth control method type

The participant's method of birth control

 Supplemental Pregnancy Information False Headache Headache
C00004 Birth country ISO code

Code (ISO 3166-1 alpha-2 code) for country where the participant/subject was born

 Supplemental Demographics False Headache Headache
C00005 Birth country name

Name for country where the participant/subject was born

 Supplemental Demographics False Headache Headache
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core Demographics False Headache Headache
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core General Core False Headache Headache
C16053 Birth length child value

Value of the length of the participant's/subject's child at birth

 Exploratory Pregnancy Outcome False Headache Headache
C15984 Birth order number

Number of the birth order or the sequence of the participant's/subject's birth in the family group

 Supplemental Demographics False Headache Headache
C19037 Birth order other text

The free-text field related to 'Birth order number' specifying other text. Number of the birth order or the sequence of the participant's/subject's birth in the family group

 Supplemental Demographics False Headache Headache
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core General Core False Headache Headache
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

 Supplemental General Core False Headache Headache
C16051 Birth weight child value

Value of the weight of the participant/subject's child at birth

 Exploratory Pregnancy Outcome False Headache Headache
C55937 Birth weight mother value

Value of the weight of the participant/subject at birth

 Exploratory Pregnancy Outcome False Headache Headache
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

 Core Vital Signs False Headache Headache
C01553 Blood pressure measurement position type

Indicator of the participant's position during the blood pressure measurement

 Supplemental Vital Signs False Headache Headache
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

 Core Vital Signs False Headache Headache
C56063 Blood sample last acute abortive time

The time the last acute abortive was taken in relationship to the blood sample

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56097 Blood time collection storage interval

The interval between the time blood was collected and stored

 Supplemental Biospecimens Collection and Processing False Headache Headache
C56101 Blood time storage analysis interval

The interval of time between blood storage and analysis

 Supplemental Biospecimens Collection and Processing False Headache Headache
Displaying 26 - 50 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.