CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2619-C16046	C16046	Pregnancy labor delivery complication indicator	Indicator of whether there were complications during labor/delivery	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2032-C07432	C07432	Patient Health Questionnaire (PHQ) - Sleep impairment score	Score of how much the subject has been bothered with troubling falling/staying asleep or sleeping too much in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2630-C13994	C13994	Imaging PET localization processing type	Type of processing performed on image produced by positron emission tomography (PET) localization	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2620-C15931	C15931	Quantitative sensory testing vibration electrical stimuli frequency value	Frequency of vibration or electrical stimuli used during testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C19019	C19019	Imaging acquisition type other text	The free-text field related to 'Imaging acquisition type' specifying other text. Type of imaging acquisition	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2491-C17438	C17438	EEG sampling rate	Electroencephalography (EEG) sampling rate, commonly recorded in Hz (250-2000 Hz)	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C12710	C12710	Electrophysiology assessment date and time	Date the particular electrophysiology study was performed	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2684-C15969	C15969	Headache or migraine medication taken type	Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16057	C16057	Activity pulse grimace appearance respiration five minute child score	Assessment of a newborn which is recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness. This score describes the participant's/subject's child. Activity pulse grimace appearance respiration (APGAR)	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C08245	C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2032-C07441	C07441	Patient Health Questionnaire (PHQ) - Difficulty performing scale	The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2612-C15555	C15555	Imaging visual analysis performed indicator	Whether visual analysis was performed while blind to clinical data	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2629-C16002	C16002	Relative second degree live count	The total number of the participant/subject second-degree living relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2684-C15980	C15980	Headache affected activity type	Types of school or other activities affected by the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16069	C16069	Placenta umbilical cord abnormality indicator	Indicates whether the participant/subject experienced any abnormalities of placenta or umbilical cord	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2490-C00707	C00707	Alcohol consume six or more drinks frequency	The rate of occurrence for when the participant/subject consumes six or more drinks containing alcohol on one occasion. It is noted that the meaning of "drinks consumed" differs from one nation and culture to another, so the most common alcoholic beverages likely to be consumed will be defined as well as quantity of each that constitutes a drink (approximately 10 grams of pure ethanol). For example, one bottle of beer (330 ml at 5% ethanol), a glass of wine (140 ml at 12% ethanol), and a shot of spirits (40 ml at 40% ethanol) represent a standard drink of about 13 g of ethanol	Supplemental	Behavioral History	False	Headache	Headache
F2629-C16208	C16208	Family history medical condition second-degree relative type	Relationship of the second-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Medical and Family History	False	Headache	Headache
F2619-C18829	C18829	Delivery mode induced other text	The free-text field related to 'Delivery mode type' for induced delivery mode. Type of delivery mode of the neonate	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C15598	C15598	Imaging stimulation on period duration	Duration on period of the stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F1362-C01013	C01013	Physical exam description text	Free text field to describe the abnormality in a specific body system or an explanation of why the body system was not examined	Supplemental	Physical Exam	False	Headache	Headache
F2685-C13207	C13207	Generalized Anxiety Disorder (GAD-7) - worry too much scale	Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Headache	Headache
F2611-C15545	C15545	Gene nucleotide change name	In cases of an genetic variant or mutation, specify the nucleotide name	Supplemental	DNA Elements	False	Headache	Headache
F2620-C15913	C15913	Quantitative sensory testing stimulation type	Type of QST stimulation	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15635	C15635	Imaging skull stripping performed indicator	Skull stripping performed for anatomical and functional images	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2619-C11078	C11078	Delivery mode type	Type of delivery mode of the neonate	Exploratory	Pregnancy Outcome	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.