CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2634-C15638	C15638	Imaging multiple comparisons method text	Type of method(s) chosen for correcting for multiple comparisons	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C16010	C16010	Headache migraine diagnosis indicator	Indicator of whether the participant/subject has been diagnosed with the type of headache or migraine	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2490-C00706	C00706	Alcohol prior use indicator	Indicator of the participant's/subject's alcohol consumption prior to the past 12 months	Supplemental	Behavioral History	False	Headache	Headache
F2619-C11081	C11081	Delivery caesarean timing status	Status of the caesarean delivery	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2611-C15553	C15553	Gene unclassified variant shown indicator	Indicator of whether an unclassified variant shown	Supplemental	DNA Elements	False	Headache	Headache
F2639-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Headache	Headache
F2620-C15926	C15926	Quantitative sensory testing thermode electrode size value	Size of the thermode/electrode used during testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C18018	C18018	Imaging rationale threshold results text	Rationale for thresholds	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2613-C02014	C02014	Medication prior or concomitant name	Name of the prior/concomitant agent or drug administered	Supplemental	Concomitant Medications	False	Headache	Headache
F2626-C56045	C56045	Headache migraine physician diagnosis medical documentation indicator	Indicator of whether the participant/subject has a physician diagnosis or medical documentation of headaches or migraines	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2684-C15950	C15950	Headache typical pain type	Type of pain the participant/subject experiences with the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2490-C06108	C06108	Tobacco smoke pack-year value	If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]	Supplemental	Behavioral History	False	Headache	Headache
F2619-C16050	C16050	Phenotypic sex child type	Sex of the participant/subject's child based on physical examination	Exploratory	Pregnancy Outcome	False	Headache	Headache
F1362-C01012	C01012	Physical exam body system result type	Assessment result of each body system examined	Supplemental	Physical Exam	False	Headache	Headache
F2620-C15934	C15934	Temperature skin measurement	The participant/subject's baseline skin temperature	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2684-C15975	C15975	Headache post initial study medication time interval	The time interval after taking initial study medication for headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16062	C16062	Pregnancy fetal diagnostic test performed indicator	Indicates whether there were any abnormal fetal diagnostic tests performed during the pregnancy	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C10577	C10577	Imaging signal averages number	Number of signal acquisitions averaged in imaging acquisition	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Headache	Headache
F2492-C15620	C15620	Imaging repetition count	Number of repetitions used during acquisition of psychodynamic data	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2684-C19034	C19034	Headache or migraine medication taken other text	The free-text field related to 'Headache or migraine medication taken type' specifying other text. Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C17998	C17998	Pregnancy labor delivery complication specification text	Text about the participant/subject's experience with any complications during labor/delivery	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2612-C15561	C15561	Imaging angiography contrast enhanced text	If contrast enhanced in angiography, specify the method	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2032-C07431	C07431	Patient Health Questionnaire (PHQ) - Depressed score	Score of how much the subject has been feeling down and depressed in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2622-C15526	C15526	Imaging transcranial magnetic stimulation equipment name	The name of TMS Imaging equipment used during the test on the participant/subject, specifically, manufacturer and model name, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache

Displaying 101 - 125 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.