CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2611-C10846	C10846	Gene variant or mutation indicator	Indicator whether a variant or mutation was found in the common gene screened in the participant/subject for the disease or disorder	Supplemental	DNA Elements	False	Headache	Headache
F2630-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2613-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Concomitant Medications	False	Headache	Headache
F2612-C08240	C08240	Imaging flip angle measurement	Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2640-C01541	C01541	Weight measurement	Measurement of participant's weight	Core	Vital Signs	False	Headache	Headache
F2632-C08240	C08240	Imaging flip angle measurement	Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle	Supplemental	Anatomical Imaging	False	Headache	Headache
F2640-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Core	Vital Signs	False	Headache	Headache
F2617-C16173	C16173	Pregnancy estimate delivery date and time	The date and time (if applicable) the participant is estimated to deliver the pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2639-C00008	C00008	Age value	Value for participant's age, calculated as elapsed time since the birth of the participant	Supplemental	Demographics	False	Headache	Headache
F2613-C02016	C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental	Concomitant Medications	False	Headache	Headache
F3060-C19035	C19035	Headache aura symptom other text	The free-text field related to 'Headache aura symptom type' specifying other text. Type of aura (warning) that a headache was going to start	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2614-C10685	C10685	Imaging slice orientation type	Type of slice orientation used in imaging acquisition	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2632-C08241	C08241	Imaging field of view axis 1 measurement	Measurement of axis 1 of the image that is visible through the camera at a particular position in orientation and space in millimeters	Supplemental	Anatomical Imaging	False	Headache	Headache
F2640-C11131	C11131	Body mass index value	Value of the participant's body mass index, calculated from height and weight	Supplemental	Vital Signs	False	Headache	Headache
F2634-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2673-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2617-C16175	C16175	Menstrual period last date	Date of the participant's last menstrual period	Supplemental	Pregnancy Information	False	Headache	Headache
F2619-C16065	C16065	Congenital anomaly child indicator	Indicates whether there were congenital anomalies in the participant's/subject's child	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C10842	C10842	Imaging analysis software name	Name of the software used for data processing or analysis of the imaging study	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2612-C08245	C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2490-C55907	C55907	Nonsubscribed drug or substance illicitly used category	Category of illegal drugs, prescription, or over-the-counter drugs unsubscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Behavioral History	False	Headache	Headache
F1362-C01015	C01015	Physical exam performed indicator	Indicator of whether a physical exam was performed on the participant/subject	Supplemental	Physical Exam	False	Headache	Headache
F2629-C16025	C16025	Family history second-degree physician diagnosis count	The number of second-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History	False	Headache	Headache
F2619-C18001	C18001	Newborn complication child specification text	Text specifying other newborn complications	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C15592	C15592	Imaging stimulation device model text	Model of device used for stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.