CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3060-C59656	C59656	Headache category other text	The free-text field related to 'Headache category' specifying other text	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2615-C55788	C55788	Imaging evoked potentials (EV) averaged response sequential block responses per block number	The number of sequential blocks of averaged responses and the number of responses in each block, as part of the Blink Reflex and Pain-Related Evoked Potentials Imaging test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2610-C56093	C56093	Specimen collected for biomarker indicator	The indicator relating to whether the participant had any specimen(s) collected for biomarkers	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2491-C56666	C56666	Imaging magnetoencephalography scanner data format exported type	The type of data format that was exported from magnetoencephalography (MEG) scanners to local workstations/computers	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2491-C56626	C56626	Imaging magnetoencephalography magnetic noise assessment other text	Text describing another type of assessment of magnetic noise used for the MEG imaging	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2673-C56783	C56783	Headache re-start medication taken time	The time at which the participant/subject took the pain medication for his/her re-started headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C56592	C56592	Imaging surface area result	Results of surface area measures/comparison of the image study	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C59624	C59624	Headache after traumatic brain injury intensity change category	Category which represents headache intensity since participant/subject experienced a traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59675	C59675	Headache before traumatic brain injury noncontinuous inadequate treatment duration	Duration of participant/subject's inadequately treated noncontinuous headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2629-C56023	C56023	Sibling decease primary cause text	Text describing the primary cause of the subject's sibling's death	Supplemental	Medical and Family History	False	Headache	Headache
F2492-C56748	C56748	Cortical evoked potential somatosensory stimulus other text	Text describing another somatosensory stimulus that was administered for the recording of the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2490-C56034	C56034	Pittsburgh Sleep Quality Index (PSQI) - Asleep past month hour duration	The duration of time (in hours) the subject was asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Behavioral History	False	Headache	Headache
F2491-C56721	C56721	Imaging magnetoencephalography spectral time frequency component result	Results of the spectral time/frequency components measures/comparison of the magnetoencephalography (MEG) study	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3059-C59631	C59631	Headache laterality type	Type of side were headache is located	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2492-C56756	C56756	Cortical evoked potential block averaging sequential block count	The number of sequential blocks for visually or somatosensory stimulated evoked potentials	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F3059-C59640	C59640	Headache additional symptom unilateral same side present indicator	Indicator of whether the participant's/subject's symptom is present on the same side to the headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2634-C55778	C55778	Imaging inter peri ictal next headache start duration	The duration of time until the start of the subject's next inter-ictal or peri-ictal headache	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2492-C56764	C56764	Cortical evoked potential habituation first last block distance percentage indicator	The indicator related to whether the percentage between the first and last block was measured for the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2634-C13965	C13965	Imaging paradigm task design type	Nature of stimuli presented	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2625-C56047	C56047	Migraine without aura five attacks International Classification of Headache Disorders criteria B D indicator	Indicator relating to whether or not the participant/subject had at least 5 migraine attacks fulfilling criteria B-D from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2491-C56612	C56612	Imaging magnetoencephalography scanner used count	The number of different MEG scanners that were used on the subject	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C55776	C55776	Imaging ictal headache since onset duration	The duration of time since the onset of the subject's headache if it was ictal	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2610-C56142	C56142	Assay lower detection limit value	The value of the lower limit of detection of the assay	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F3059-C59659	C59659	Headache before traumatic brain injury history indicator	Indicator of whether the participant/subject had experienced headaches prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2634-C56603	C56603	Imaging analysis approach other text	Text describing another analysis approach that was made for the imaging	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.