CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2610-C56071	C56071	Cigarette smoked past week count	The number of cigarettes the participant has smoked in the past week	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2673-C56785	C56785	Headache premonitory symptom type	The type of premonitory symptom(s) (symptoms that come before headache) that the participant/subject experienced	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C56594	C56594	Imaging significant cluster size text	Text describing the size of any significant clusters found	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C59626	C59626	Headache days per week count	Count of days the participant/subject experienced headaches in a week	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2622-C18715	C18715	Imaging radio frequency coil other text	The free-text field related to 'Imaging radio frequency coil type' specifying other text. Type of radio frequency (RF) coil(s) used for the body part scanned	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2614-C59013	C59013	Imaging voxel anatomic site type	Type of anatomic site in which the voxel is located (e.g., brain left frontal white matter)	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2610-C56086	C56086	Recreational substance name	The name of the recreational substance the participant uses	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2492-C56774	C56774	Cortical evoked potential latency measurement	The measurement of any latencies of transient evoked potentials	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F3060-C59634	C59634	Headache worse with neck movement indicator	Indicator of whether the subject's/participant's headaches worsen with neck movements	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2622-C55777	C55777	Imaging inter peri ictal headache since end duration	The duration of time since the end of the subject's last inter-ictal or peri-ictal headahe	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F3059-C59683	C59683	Memory concentration difficult without headache indicator	Indicator of whether participant/subject experienced difficulty with memory/concentration without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2610-C56098	C56098	Sample temperature before centrifugation storage value	The temperature of the biomarker sample before centrifugation or storage	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F3060-C59642	C59642	Headache aura symptom type frequency category	Category that describes how the aura symptom type effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2621-C18677	C18677	Employment other text	The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment	Supplemental	Social Status	False	Headache	Headache
F2630-C55774	C55774	Imaging headache relation time type	The type of timing of the imaging in relation to headache	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2610-C56111	C56111	Specimen centrifugation speed value	The speed at which the specimen was centrifuged	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C54753	C54753	Specimen collection tube type	Type of tube used for specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F3060-C59650	C59650	Gait postural imbalance without headache frequency category	Category that describes how frequently the headache associated symptom of gait and/or postural imbalance affects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2632-C18695	C18695	Imaging diffusion other text	The free-text field related to 'Imaging diffusion type' specifying other text. Type of image output for the diffusion imaging study	Supplemental	Anatomical Imaging	False	Headache	Headache
F2615-C55778	C55778	Imaging inter peri ictal next headache start duration	The duration of time until the start of the subject's next inter-ictal or peri-ictal headache	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2610-C56125	C56125	Centrifugation substance added before after indicator	The indicator relating to whether any substances were added before or after centrifugation	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2620-C58648	C58648	Quantitative sensory testing increase stimulation rate unit of measure	The unit of measure for the rate of increase of stimulation in quantitative sensory testing. Related to "Quantitative sensory testing increase stimulation rate value"	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2610-C56053	C56053	Sample obtain with headache indicator	The indicator relating to the sample being obtained while the participant was having a headache	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F3060-C59658	C59658	Relative biological first degree diagnosis headache history indicator	Indicator of whether first-degree biological relatives of the participant/subject has a history of diagnosed headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2673-C56777	C56777	Headache start date and time	The time at which the participant/subject's headache started	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache

Displaying 126 - 150 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.