CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2621-C55906	C55906	Military service status text	Text specifying the subject's position in the military	Supplemental	Social Status	False	Headache	Headache
F2615-C55775	C55775	Imaging ictal pain intensity value	The value related to the intensity of the subject's pain if the timing is ictal	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2610-C56077	C56077	Prescription medication dose	The dose of the participant's prescription medication	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2620-C55776	C55776	Imaging ictal headache since onset duration	The duration of time since the onset of the subject's headache if it was ictal	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2492-C56769	C56769	Cortical evoked potential intensity dependence measurement	The measurement of the intensity dependence for auditory evoked potentials	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F3059-C59635	C59635	Headache worse with mental activity indicator	Indicator of whether the subject's/participant's headaches worsen with mental activity	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2634-C55773	C55773	Imaging MRI scanner used count	The number of different MRI scanners that were used on the subject	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2615-C55787	C55787	Imaging evoked potential (EV) recording parameter type	The type of recording parameter used for the imaging, as part of the Blink Reflex and Pain-Related Evoked Potentials Test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2610-C56091	C56091	Postmenopausal last menstruation date	The date of the participant's last menstruation if she is postmenopausal	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F3059-C59643	C59643	Headache aura experience percent value	Value of (the percentage of) headaches the participant/subject experience with auras	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2490-C55977	C55977	Overall diet health scale	A general scale of how healthy the participant/subject's diet is	Supplemental	Behavioral History	False	Headache	Headache
F2634-C56598	C56598	Imaging functional scan patient task type	The type of task that the patient performed for the evoked functional scan, if applicable	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2625-C56050	C56050	Migraine without aura symptom during headache type	Type of symptom the patient/subject reports as having occurred during his or her headache	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2610-C56102	C56102	Biomarker specimen type	The type of specimen or specimens collected from the participant/subject for biomarkers	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2614-C55778	C55778	Imaging inter peri ictal next headache start duration	The duration of time until the start of the subject's next inter-ictal or peri-ictal headache	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F3059-C59662	C59662	Headache prior diagnosis type other text	The free-text field related to 'Headache prior diagnosis type' specifying other text	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2490-C56031	C56031	Pittsburgh Sleep Quality Index (PSQI) - Get up morning past month time	The time at which the subject got up in the morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Behavioral History	False	Headache	Headache
F2634-C56606	C56606	Region coordinate z value	Value representing the region's z coordinate	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2684-C56783	C56783	Headache re-start medication taken time	The time at which the participant/subject took the pain medication for his/her re-started headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2625-C56105	C56105	Chronic migraine fulfill International Classification of Headache Disorders criteria B C indicator	Indicator related to whether or not the patient/subject has headaches (tension-type-like and/or migraine) for =15 days per month for >3 months, and fulfills criteria B and C from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2622-C55774	C55774	Imaging headache relation time type	The type of timing of the imaging in relation to headache	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2610-C56117	C56117	CSF specimen total protein value	The value representing the total protein found in the participant's CSF specimen	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C55005	C55005	Specimen centrifugation duration	The duration related to centrifugation	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F3059-C59670	C59670	Headache mild before traumatic brain injury average monthly frequency	Average monthly frequency of headaches the participant/subject experienced with mild severity prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2629-C56018	C56018	Relative first degree decease primary cause text	Text describing the primary cause of the subject's first-degree relative's death	Supplemental	Medical and Family History	False	Headache	Headache

Displaying 101 - 125 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.