CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2619-C18001	C18001	Newborn complication child specification text	Text specifying other newborn complications	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2639-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Headache	Headache
F3059-C15897	C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2618-C16211	C16211	Headache pain medication after study drug indicator	Indicator whether the subject has received any additional pain or headache medications after the study drug was administered	Supplemental	Rescue Treatments	False	Headache	Headache
F2634-C15642	C15642	Imaging statistical parametric mapping contrasts text	Define contrasts in statistical parametric mapping	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2490-C00714	C00714	Behavioral history assessment date and time	Date (and time, if applicable and known) the participant/subject behavioral history was taken	Supplemental	Behavioral History	False	Headache	Headache
F1362-C00312	C00312	Body system category	Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured interview and physical examination of all the body systems	Supplemental	Physical Exam	False	Headache	Headache
F2629-C17991	C17991	Relative second degree decease count unknown indicator	Indicator of the unknown number of deceased second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2620-C15911	C15911	Quantitative sensory testing outcome type	Type of QST outcome being measured	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2639-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Headache	Headache
F2619-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2684-C15966	C15966	Diary day headache indicator	Indicator of whether the participant/subject experienced a headache on a particular day	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2490-C55966	C55966	Alcohol use stopped age not applicable status	Status indicating that age quit drinking does not apply to the subject/participant, as they are still ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Headache	Headache
F2634-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2622-C15586	C15586	Total amount received value	The value of the total amount of TMS applications the participant/subject received, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form.	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2617-C16011	C16011	Pregnancy confirmed date and time	Date the participant/subject's current pregnancy was confirmed	Supplemental	Pregnancy Information	False	Headache	Headache
F2621-C00220	C00220	Military USA rank category	Category that describes the participant's/subject's rank in the military	Supplemental	Social Status	False	Headache	Headache
F2673-C15939	C15939	Headache typical level activities affected result	Result of onset of headache in usually daily activities	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C15631	C15631	Imaging thickness result	Results of thickness measures/comparison of the image study	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C15936	C15936	Headache history indicator	Indicates whether participant/subject suffers from headaches	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2610-C15630	C15630	Postpartum day week value	Number of days/weeks the participant/subject has been postpartum	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2639-C19037	C19037	Birth order other text	The free-text field related to 'Birth order number' specifying other text. Number of the birth order or the sequence of the participant's/subject's birth in the family group	Supplemental	Demographics	False	Headache	Headache
F2630-C15537	C15537	Imaging study condition type	Type of condition the imaging study is focusing on	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2617-C16022	C16022	Pregnancy prior history births full-term count	Count of the total number of pregnancies the participant/subject has carried for a full term (>= 37 weeks)	Supplemental	Pregnancy Information	False	Headache	Headache
F2621-C15987	C15987	Employment weekly hour count	The number of employment hours the participant/subject works per week	Supplemental	Social Status	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.