CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2634-C15623	C15623	Imaging nonstimulation fixation landmark indicator	Type of fixation landmark	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2619-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2490-C55966	C55966	Alcohol use stopped age not applicable status	Status indicating that age quit drinking does not apply to the subject/participant, as they are still ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Headache	Headache
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Headache	Headache
F3059-C15897	C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2620-C15921	C15921	Quantitative sensory testing maximum stimulation intensity value	Measure of the maximum level of stimulation used during the testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15642	C15642	Imaging statistical parametric mapping contrasts text	Define contrasts in statistical parametric mapping	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2613-C02003	C02003	Medication prior or concomitant ongoing indicator	Indicator of or description that the prior/concomitant medication usage is ongoing	Supplemental	Concomitant Medications	False	Headache	Headache
F2626-C16025	C16025	Family history second-degree physician diagnosis count	The number of second-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2619-C16042	C16042	Delivery mode induced reason	Type of induced delivery that occurred during the live infant birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2611-C19011	C19011	Gene mutation specify text	The free-text field related to 'Gene mutation type'. The type of genetic variant or mutation shown	Supplemental	DNA Elements	False	Headache	Headache
F2639-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Headache	Headache
F2630-C08258	C08258	Imaging radioligand type	Isotope-labeled bioactive compound (generic or common name) used in the imaging scan	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2620-C15929	C15929	Quantitative sensory testing stimulus duration	Duration of stimulus used during testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2629-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Supplemental	Medical and Family History	False	Headache	Headache
F2684-C15966	C15966	Diary day headache indicator	Indicator of whether the participant/subject experienced a headache on a particular day	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16055	C16055	Full term delivery child indicator	Indicates whether the participant's/subject's child was delivered full-term	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2491-C15638	C15638	Imaging multiple comparisons method text	Type of method(s) chosen for correcting for multiple comparisons	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2032-C07438	C07438	Patient Health Questionnaire (PHQ) - Movement speech impairment score	Score of how much the subject has been suffering with moving or speaking too slowly in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2629-C15999	C15999	Relative first degree decease count	The total number of the participant/subject first-degree deceased relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2684-C15978	C15978	Headache re-start date and time	The time of the day (24 hr clock) that the headache restarted	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16065	C16065	Congenital anomaly child indicator	Indicates whether there were congenital anomalies in the participant's/subject's child	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C10842	C10842	Imaging analysis software name	Name of the software used for data processing or analysis of the imaging study	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2612-C08245	C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.