CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2610-C15618	C15618	Premenopausal indicator	Whether or not the participant/subject is currently in her premenopausal phase	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2617-C16015	C16015	Prenatal testing type	The type of prenatal testing that was performed for the current pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2621-C00226	C00226	Health insurance type	Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Social Status	False	Headache	Headache
F2629-C08147	C08147	Data source	Source of the data provided on the case report form	Supplemental	Medical and Family History	False	Headache	Headache
F2634-C10568	C10568	Imaging radio frequency coil channel count	Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2610-C16174	C16174	Menopause indicator	Indicates whether participant is currently menopausal	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2624-C15967	C15967	Diary day migraine indicator	Indicator of whether the participant/subject thought the headache was a migraine	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2620-C15925	C15925	Quantitative sensory testing examiner count	Number of examiners performing QST throughout the study	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2673-C15966	C15966	Diary day headache indicator	Indicator of whether the participant/subject experienced a headache on a particular day	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C15639	C15639	Imaging coordinate of significant cluster text	Text representing the coordinate of significant clusters	Supplemental	Anatomical Imaging	False	Headache	Headache
F2619-C16049	C16049	Birth child date and time	Date of birth of participant/subject's most recent live birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2032-C07433	C07433	Patient Health Questionnaire (PHQ) - Tired little energy score	Score of how much the subject has been feeling tired in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2620-C15933	C15933	Quantitative sensory testing stimulus rest period duration unit of measure	The units used to measure duration between stimulus rest periods	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2673-C15978	C15978	Headache re-start date and time	The time of the day (24 hr clock) that the headache restarted	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2619-C16060	C16060	Weight delivery mother unit of measure	Units for the measurement of the participant's/subject's weight at the time she gave birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2491-C18009	C18009	Imaging threshold rationale text	Text representing the rationale for choosing a certain threshold for the results	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C15592	C15592	Imaging stimulation device model text	Model of device used for stimulation	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2490-C00700	C00700	Alcohol use stopped age value	Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Headache	Headache
F2619-C17997	C17997	Pregnancy fetus not normal description text	Description of the abnormal pregnancy fetus	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2640-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Vital Signs	False	Headache	Headache
F2612-C15558	C15558	Imaging angiography method type	Type of angiography method performed	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2632-C10577	C10577	Imaging signal averages number	Number of signal acquisitions averaged in imaging acquisition	Supplemental	Anatomical Imaging	False	Headache	Headache
F2490-C00708	C00708	Alcohol use related to hospitalization indicator	Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)	Supplemental	Behavioral History	False	Headache	Headache
F2684-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C55936	C55936	Length birth child unit of measure	Measure of the length of the participant/subject's child at birth	Exploratory	Pregnancy Outcome	False	Headache	Headache

Displaying 801 - 825 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.