CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2620-C15914	C15914	Quantitative sensory testing stimulation anatomic site	Body site stimulated for QST	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15636	C15636	Imaging comparison P-values number	P-values used for comparisons between cohorts or the group averages	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C16005	C16005	Headache migraine type	Type of headache or migraine	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2619-C11079	C11079	Neonate delivery route type	Route of delivery of the neonate	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2611-C15545	C15545	Gene nucleotide change name	In cases of an genetic variant or mutation, specify the nucleotide name	Supplemental	DNA Elements	False	Headache	Headache
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Headache	Headache
F2639-C00024	C00024	Language primary ISO code	Code (ISO 639-2) for the language the participant/subject speaks most often	Supplemental	Demographics	False	Headache	Headache
F3059-C15950	C15950	Headache typical pain type	Type of pain the participant/subject experiences with the headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2620-C15924	C15924	Data point exceed safety parameter indicator	Indicates whether there were any data points that exceeded the safety parameters	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C18013	C18013	Imaging spatial normalization name	Name of spatial normalization approach transformation from functional space to a standard brain space	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2613-C02011	C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Supplemental	Concomitant Medications	False	Headache	Headache
F2626-C17992	C17992	Additional comment text	Text describing any additional information about the participant or the participant's family history	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2619-C16048	C16048	Tocolytic agents required during preterm labor indicator	Indicator of whether medications used to suppress premature labor were required during preterm labor	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2490-C19502	C19502	Tobacco cigarettes smoke daily average value	Tobacco cigarettes smoked daily average number	Supplemental	Behavioral History	False	Headache	Headache
F2032-C07432	C07432	Patient Health Questionnaire (PHQ) - Sleep impairment score	Score of how much the subject has been bothered with troubling falling/staying asleep or sleeping too much in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Headache	Headache
F2630-C13995	C13995	PET localization rating type	Localization rating indicator of imaging using positron emission tomography (PET)	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2620-C15932	C15932	Quantitative sensory testing stimulus rest period duration	Duration between stimulus rest periods/intertrial intervals	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C19020	C19020	Imaging stimulation other text	The free-text field related to 'Imaging stimulation type' specifying other text. Type of stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2629-C08087	C08087	Sibling death age value	Age of sibling when he/she died	Supplemental	Medical and Family History	False	Headache	Headache
F2684-C15971	C15971	Headache warning symptom indicator	Indicator for any auras (warnings) that the headache was going to start	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16058	C16058	Activity pulse grimace appearance respiration ten minute child score	Assessment of a newborn which is recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness. This score describes the participant's/subject's child. Activity pulse grimace appearance respiration (APGAR)	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C08264	C08264	Imaging raw data reconstruction method type	The type of method used for reconstruction of raw data from the imaging scan	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2624-C15966	C15966	Diary day headache indicator	Indicator of whether the participant/subject experienced a headache on a particular day	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2491-C17438	C17438	EEG sampling rate	Electroencephalography (EEG) sampling rate, commonly recorded in Hz (250-2000 Hz)	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C12710	C12710	Electrophysiology assessment date and time	Date the particular electrophysiology study was performed	Supplemental	Cortical Evoked Potentials	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.