CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2619-C16063	C16063	Pregnancy fetal diagnostic test date	Date the fetal diagnostic testing was performed during the pregnancy	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C10837	C10837	Imaging gap between slices measurement	Measurement of the gap between slices used in imaging acquisition	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2492-C17438	C17438	EEG sampling rate	Electroencephalography (EEG) sampling rate, commonly recorded in Hz (250-2000 Hz)	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2617-C19040	C19040	Prenatal testing other text	The free-text field related to 'Prenatal testing type' specifying other text. The type of prenatal testing that was performed for the current pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2490-C00702	C00702	Alcohol use started age value	Age in years when participant/subject started ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Headache	Headache
F2629-C16019	C16019	Family history relative first-degree affect count	The number of first-degree relatives affected with the medical condition	Supplemental	Medical and Family History	False	Headache	Headache
F2684-C53077	C53077	Migraine headache light indicator	Indicator as to whether light bothers participant/subject when experiencing a migraine headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C17999	C17999	Tocolytic agents required during preterm specification text	Text specifying the tocolytic agents the participant/subject required during preterm labor	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C15585	C15585	Imaging stimulation type	Type of stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2612-C15565	C15565	Imaging angiography time of flight method duration	Time of flight (TOF) method duration	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2618-C02025	C02025	Medication prior or concomitant RXNorm code	Code for name of the prior/concomitant agent or drug administered	Supplemental	Rescue Treatments	False	Headache	Headache
F2490-C00711	C00711	Tobacco prior use indicator	Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months	Supplemental	Behavioral History	False	Headache	Headache
F2629-C17989	C17989	Relative second degree total count unknown indicator	Indicator of the unknown total number of second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2620-C01580	C01580	Temperature unit of measure	Unit of measure for the temperature numerical value	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15609	C15609	Imaging rest duration	The rest duration between multiple evoked functional acquisitions	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2490-C55953	C55953	Tobacco use stopped age not applicable status	Status indicating that age stopped tobacco use does not apply to the subject/participant as they are still using tobacco	Supplemental	Behavioral History	False	Headache	Headache
F1362-C01028	C01028	Physical exam condition SNOMED CT code	Medical condition/disease found during the physical examination of the participant/subject. Systematized Nomenclature of Medicine-Clinical Terms (SNOMED CT)	Supplemental	Physical Exam	False	Headache	Headache
F2685-C13211	C13211	Generalized Anxiety Disorder (GAD-7) - feeling afraid scale	Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)	Supplemental-Highly Recommended	Generalized Anxiety Disorder (GAD-7)	True	Headache	Headache
F2620-C15918	C15918	Quantitative sensory testing test methodology type	Type of methodology used for QST imaging	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15639	C15639	Imaging coordinate of significant cluster text	Text representing the coordinate of significant clusters	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C16019	C16019	Family history relative first-degree affect count	The number of first-degree relatives affected with the medical condition	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2619-C16037	C16037	Pregnancy most recent live born infant indicator	Indicates whether the outcome of the participant/subject's most recent pregnancy was a live born infant?	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2611-C15557	C15557	Gene detection method type	The method used to detect the gene mutation or variant	Supplemental	DNA Elements	False	Headache	Headache
F3059-C16207	C16207	Family history medical condition first-degree relative type	Relationship of the first-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2620-C15927	C15927	Quantitative sensory testing increase stimulation rate value	Rate of increase of stimulation used during testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache

Displaying 726 - 750 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.