CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3059-C59673	C59673	Headache before traumatic brain injury complete freedom monthly day count	Count of monthly frequency of complete freedom from headache the participant/subject experienced prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2629-C56021	C56021	Sibling decease count	The total number of deceased siblings that the subject has	Supplemental	Medical and Family History	False	Headache	Headache
F2492-C56746	C56746	Cortical evoked potential stimulation parameter somatosenory type other text	Text describing another somatosensory stimulation used for recording the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2491-C56719	C56719	Imaging magnetoencephalography source imaging other text	Text describing another source imaging parameter used for the analysis of the magnetoencephalography (MEG) data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2491-C56612	C56612	Imaging magnetoencephalography scanner used count	The number of different MEG scanners that were used on the subject	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C56754	C56754	Cortical evoked potential recorded response type	The type of recorded response from the evoked potential recording	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2491-C56727	C56727	Imaging magnetoencephalography abnormal activity activation strength text	Text describing the strength of any abnormal activity/activation found in the magnetoencephalography (MEG) recording	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3059-C59638	C59638	Headache additional symptom type present indicator	Indicator of whether the participant's/subject's headache symptom is present	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2491-C56649	C56649	Imaging stimulation task delivery system type	The type of stimulation or task delivery system used during data acquisition	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3060-C59647	C59647	Sensitivity to sound without headache frequency category	Category that describes how frequently the headache associated symptom of sensitivity to sound effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2621-C55906	C55906	Military service status text	Text specifying the subject's position in the military	Supplemental	Social Status	False	Headache	Headache
F2615-C55775	C55775	Imaging ictal pain intensity value	The value related to the intensity of the subject's pain if the timing is ictal	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2630-C56595	C56595	Imaging PET localization processing other text	Text describing another type of processing performed on image produced by positron emission tomography (PET) localization	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2491-C56697	C56697	Imaging magnetoencephalography time frequency analysis method type	The method or methods used for time-frequency analysis of the magnetoencephalography (MEG) recording	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2610-C56077	C56077	Prescription medication dose	The dose of the participant's prescription medication	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2620-C55776	C55776	Imaging ictal headache since onset duration	The duration of time since the onset of the subject's headache if it was ictal	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2491-C56657	C56657	Imaging magnetoencephalography demagnetization before data acquisition indicator	The indicator relating to whether there was demagnetization before data acquisition	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C56769	C56769	Cortical evoked potential intensity dependence measurement	The measurement of the intensity dependence for auditory evoked potentials	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F3060-C59655	C59655	Headache category	Type of headache experienced by the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2615-C55787	C55787	Imaging evoked potential (EV) recording parameter type	The type of recording parameter used for the imaging, as part of the Blink Reflex and Pain-Related Evoked Potentials Test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2610-C56091	C56091	Postmenopausal last menstruation date	The date of the participant's last menstruation if she is postmenopausal	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2491-C56665	C56665	Imaging magnetoencephalography other device system in magnetic shielded room text	Text specifying any other devices or systems present in the magnetic shielded room	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2491-C56625	C56625	Imaging magnetoencephalography magnetic noise assessment type	The type of assessment of magnetic noise performed on the subject	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2632-C56591	C56591	Imaging morphometry analysis approach other text	Text specifying another approach to morphometry analysis	Supplemental	Anatomical Imaging	False	Headache	Headache
F2610-C56102	C56102	Biomarker specimen type	The type of specimen or specimens collected from the participant/subject for biomarkers	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.