CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2610-C56057	C56057	Headache ictal indicator	The indicator relating to whether the headache was ictal	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2491-C56648	C56648	Imaging audio monitor during data acquisition status	The status of audio monitoring during data acquisition	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3060-C59646	C59646	Sensitivity to light without headache frequency category	Category that describes how frequently the headache associated symptom of sensitivity to light effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2621-C55905	C55905	Estimated net worth value	The value of the subject's estimated family net worth	Supplemental	Social Status	False	Headache	Headache
F2615-C55774	C55774	Imaging headache relation time type	The type of timing of the imaging in relation to headache	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2630-C55778	C55778	Imaging inter peri ictal next headache start duration	The duration of time until the start of the subject's next inter-ictal or peri-ictal headache	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2491-C56696	C56696	Imaging magnetoencephalography integration structural imaging source other text	Text describing another structural imaging source used for integration of MEG and other anatomical imaging	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2610-C56075	C56075	Alcoholic drink consume past week count	The number of alcoholic drinks that were consumed within the past week	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2620-C55775	C55775	Imaging ictal pain intensity value	The value related to the intensity of the subject's pain if the timing is ictal	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2491-C56656	C56656	Imaging magnetoencephalography magnetic shielded room person count	The number of persons accompanying the examiner in the magnetic shielding room, if applicable	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C56768	C56768	Cortical evoked potential intensity dependence measured indicator	The indicator relating to whether the intensity dependence for auditory evoked potentials was measured	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F3060-C59654	C59654	Headache post traumatic phenotype type other text	The free-text field related to 'Headache post traumatic phenotype type' specifying other text	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2610-C56088	C56088	Recreational substance quantity value	The value representing the quantity of the recreational substance the participant uses	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2491-C56664	C56664	Imaging safety monitor system used indicator	The indicator relating to whether a safety monitoring system was used during data acquisition	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2491-C56624	C56624	Imaging magnetoencephalography head movement tolerance other text	Text describing another head movement tolerance value used during MEG recording	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2673-C56781	C56781	Headache re-start pain medication indicator	The indicator relating to whether the participant/subject took any pain medications for his/her re-started headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C56590	C56590	Imaging gross anatomical abnormality examination text	Text describing any gross anatomical abnormalities found in the examination of images	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C59622	C59622	Headache at least 30 days ratio value	Value which represents the headache ratio calculation. Applies only to patients that have had post traumatic headache for at least 30 days	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2610-C56101	C56101	Blood time storage analysis interval	The interval of time between blood storage and analysis	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2614-C55777	C55777	Imaging inter peri ictal headache since end duration	The duration of time since the end of the subject's last inter-ictal or peri-ictal headahe	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2491-C56672	C56672	Imaging magnetoencephalography bad epoch artifact noise threshold value	The artifact/noise threshold representing a bad trial of the MEG recording	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2491-C56632	C56632	Imaging magnetoencephalography acquisition mode other text	Text describing another mode of acquisition of MEG data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3060-C59630	C59630	Headache laterality anatomic site	Anatomic site location of the headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F3059-C59679	C59679	Sound sensitive without headache indicator	Indicator of whether participant/subject experienced sensitivity to sound without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2610-C56114	C56114	CSF specimen red blood cell count	The number of red blood cells (RBCs) counted in the participant's CSF specimen	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.