CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2618-C56039	C56039	Headache migraine rescue device used name	The name of the rescue device used in the treatment of headache or migraine	Supplemental	Rescue Treatments	False	Headache	Headache
F2491-C56707	C56707	Imaging magnetoencephalography latency other text	Text describing another latency approach for the magnetoencephalography (MEG) data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3059-C59669	C59669	Headache before traumatic brain injury monthly frequency	Frequency of monthly headaches the participant/subject experienced prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2629-C56017	C56017	Relative first degree decease death age value	Value representing the age of the subject's first-degree relative at their time of death	Supplemental	Medical and Family History	False	Headache	Headache
F2612-C55780	C55780	Imaging vessel studied text	Text describing any and all of the subject's vessels that were studied	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2492-C56742	C56742	Cortical evoked potential auditory laterality type	The side of the head the auditory stimulus was used on to help record the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2491-C56715	C56715	Imaging magnetoencephalography spectral latency other text	Text describing another spectral latency used in the analysis of the magnetoencephalography (MEG) data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3059-C59677	C59677	Vomit without headache indicator	Indicator of whether participant/subject experienced vomiting without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2629-C56025	C56025	Relative second degree decease primary cause text	Text describing the primary cause of the subject's second-degree relative's death	Supplemental	Medical and Family History	False	Headache	Headache
F2492-C56750	C56750	Cotical evoked potential somatosensory repetition rate value	The value of the repetition rate with respect to the somatosensory stimulant used for recording the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2611-C56032	C56032	Genetic testing performed family member reason txt	Text describing the reason for genetic testing for the subject's family members	Supplemental	DNA Elements	False	Headache	Headache
F2491-C56723	C56723	Imaging magnetoencephalography source strength result	Results of the source strength measures/comparison of the magnetoencephalography (MEG) study	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3059-C59634	C59634	Headache worse with neck movement indicator	Indicator of whether the subject's/participant's headaches worsen with neck movements	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2634-C19330	C19330	Sensory evoked potential stimulation count	The number of stimulations in sensory evoked potential	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2492-C56758	C56758	Cortical evoked potential recording device pre-amplifier text	Text describing the recording devices and pre-amplifiers used to record the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2610-C56133	C56133	Frozen aliquot volume unit of measure	The unit the frozen aliquot volume was measured in	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2621-C18684	C18684	Health insurance other text	The free-text field related to 'Health insurance type' specifying other text. Type of insurance that the participant/subject currently has providing coverage for medical, surgical or hospital care	Supplemental	Social Status	False	Headache	Headache
F2639-C55904	C55904	Sex at birth other text	Text describing another variety of the subject's self-proclaimed sex at his/her birth	Supplemental	Demographics	False	Headache	Headache
F2630-C55775	C55775	Imaging ictal pain intensity value	The value related to the intensity of the subject's pain if the timing is ictal	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2610-C56067	C56067	Participant current smoker indicator	The indicator relating to whether the participant is a current smoker	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2490-C20377	C20377	Pittsburgh Sleep Quality Index (PSQI) - Past month bed time	The bed time (recorded as 24-hour clock or military time) for the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Behavioral History	False	Headache	Headache
F2491-C56661	C56661	Imaging magnetoencephalography blood pressure monitor indicator	The indictor relating to whether a blood pressure monitor was used during data acquisition	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2491-C56621	C56621	Imaging magnetoencephalography head localization during recording type	The type of head localization for measuring head movement during the MEG recording	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3060-C59651	C59651	Memory concentration difficult without symptom frequency category	Category that describes how frequently the headache associated symptom memory/concentration effects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2632-C18706	C18706	Imaging post reconstruction filter other text	The free-text field related to 'Imaging post reconstruction filter type' specifying other text. Type of post reconstruction filter used to smooth image data	Supplemental	Anatomical Imaging	False	Headache	Headache

Displaying 251 - 275 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.