CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2610-C56118	C56118	CSF specimen test for hemoglobin contaminant method text	Text describing the method of testing for hemoglobin contaminants in the participant's CSF specimen	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C55009	C55009	Specimen storage temperature value	The temperature value for the specimen being stored	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F3060-C59632	C59632	Headache maximum pain intensity scale	Rating scale of the maximum headache pain intensity described by the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2622-C55776	C55776	Imaging ictal headache since onset duration	The duration of time since the onset of the subject's headache if it was ictal	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2640-C18767	C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Headache	Headache
F2491-C56663	C56663	Imaging magnetoencephalography sedation anesthesia other text	Text describing any other sedation or anesthesia device used during data acquisition	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3059-C59681	C59681	Dizziness vertigo without headache indicator	Indicator of whether participant/subject experienced dizziness and/or vertigo without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Headache	Headache
F3059-C59631	C59631	Headache laterality type	Type of side were headache is located	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2492-C56737	C56737	Cortical evoked potential contrast percentage value	The contrast between the dark and bright portions of a pattern seen in the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2491-C56710	C56710	Imaging magnetoencephalography topographic distribution type	The type of topographic distribution used for analysis of the magnetoencephalography (MEG) data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2610-C56142	C56142	Assay lower detection limit value	The value of the lower limit of detection of the assay	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F3059-C59640	C59640	Headache additional symptom unilateral same side present indicator	Indicator of whether the participant's/subject's symptom is present on the same side to the headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2492-C56745	C56745	Cortical evoked potential stimulation parameter somatosensory type	he type of somatosensory stimulation used for the recording of the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2634-C55778	C55778	Imaging inter peri ictal next headache start duration	The duration of time until the start of the subject's next inter-ictal or peri-ictal headache	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2491-C56718	C56718	Imaging magnetoencephalography source imaging type	The type of source image used for the analysis of the magnetoencephalography (MEG) data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2634-C13965	C13965	Imaging paradigm task design type	Nature of stimuli presented	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2625-C56048	C56048	Migraine without aura headache attack 72 hours indicator	Indicator relating to whether or not the participant/subject had at a headache attack lasting between 4 and 72 hours that was either untreated or unsuccessfully treated	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2491-C55774	C55774	Imaging headache relation time type	The type of timing of the imaging in relation to headache	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2610-C56150	C56150	Headache treatment other text	The free-text field describing another type of headache treatment	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F3059-C59659	C59659	Headache before traumatic brain injury history indicator	Indicator of whether the participant/subject had experienced headaches prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2492-C56753	C56753	Cortical evoked potential analysis time	The amount of time it took to analyze the evoked potential site	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2634-C56603	C56603	Imaging analysis approach other text	Text describing another analysis approach that was made for the imaging	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2684-C56780	C56780	Headache reduce activity level indicator	The indicator relating to whether the participant/subject's headache reduced his/her activity level	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2491-C56726	C56726	Imaging magnetoencephalography abnormal activity activation count	The number of abnormal activities/activations found in the magnetoencephalography (MEG) recording	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache

Displaying 26 - 50 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.