CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3059-C59674	C59674	Headache before traumatic brain injury continuous indicator	Indicator of whether headaches experienced by the participant/subject were continuous prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2629-C56022	C56022	Sibling decease count unknown indicator	The indicator relating to whether or not the subject knows how many deceased siblings he/she has	Supplemental	Medical and Family History	False	Headache	Headache
F2492-C56747	C56747	Cortical evoked potential somatosensory stimulus anatomic site	The anatomic site at which the somatosensory stimulus was administered for the recording of the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2490-C56031	C56031	Pittsburgh Sleep Quality Index (PSQI) - Get up morning past month time	The time at which the subject got up in the morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Behavioral History	False	Headache	Headache
F2491-C56720	C56720	Imaging magnetoencephalography waveform latency amplitude habituation result	Results of waveform latency/amplitude/habituation measures/comparison of the magnetoencephalography (MEG) study	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3059-C59630	C59630	Headache laterality anatomic site	Anatomic site location of the headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2492-C56755	C56755	Cortical evoked potential block averaging response per block count	The average number of responses per block in relation to the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F3059-C59639	C59639	Headache additional symptom laterality type	Laterality type of the participant's/subject's headache symptom	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2634-C55777	C55777	Imaging inter peri ictal headache since end duration	The duration of time since the end of the subject's last inter-ictal or peri-ictal headahe	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2492-C56763	C56763	Cortical evoked potential amplitude measurement	The measurement of the amplitudes of the evoked potential	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2491-C56594	C56594	Imaging significant cluster size text	Text describing the size of any significant clusters found	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C55775	C55775	Imaging ictal pain intensity value	The value related to the intensity of the subject's pain if the timing is ictal	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2610-C56141	C56141	Assay upper detection limit value	The value of the upper limit of detection of the assay	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F3059-C59658	C59658	Relative biological first degree diagnosis headache history indicator	Indicator of whether first-degree biological relatives of the participant/subject has a history of diagnosed headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2634-C56602	C56602	Imaging analysis approach type	The analysis approach that was made for imaging	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2684-C56779	C56779	Headache sound aggravate indicator	The indicator relating to whether sound aggravates the participant/subject or makes his/her headache worse	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2625-C56074	C56074	Migraine with aura reversible aura symptom type	Type (at least one) of reversible aura symptom that the participant/subject has experienced during a migraine	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2492-C56731	C56731	Cortical evoked potential visual wavelength type	The type of wavelength used for recording evoked potentials	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2610-C56149	C56149	Headache treatment type	The type of treatment for the participant's headache	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
F2491-C56704	C56704	Imaging magnetoencephalography waveform morphology type	The type of waveform morphology approach used for the magnetoencephalography (MEG) data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3059-C59666	C59666	Headache after traumatic brain injury frequency change indicator	Indicator of whether the participant/subject is experiencing more frequenct headaches following traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2634-C56610	C56610	Imaging data denoised indicator	The indicator relating to whether the data was denoised during preprocessing	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2612-C55777	C55777	Imaging inter peri ictal headache since end duration	The duration of time since the end of the subject's last inter-ictal or peri-ictal headahe	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2625-C56135	C56135	Chronic migraine meet International Classification of Headache Disorders criteria indicator	Indicator related to whether or not the patient/subject's condition meets the criteria for chronic migraines based on International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
F2492-C56739	C56739	Cortical evoked potential tone burst frequency	The specified frequency of the tone burst stimulus used for the recording of evoked potentials	Supplemental	Cortical Evoked Potentials	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.