CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2610-C56134	C56134	Specimen freezing time	The time of specimen freezing	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2621-C18739	C18739	Military USA service branch other text	The free-text field related to 'Military USA service branch type' specifying other text. Branch of service in the U.S. military, not including the Commissioned Corps	Supplemental	Social Status	False	Headache	Headache
F2630-C55776	C55776	Imaging ictal headache since onset duration	The duration of time since the onset of the subject's headache if it was ictal	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2610-C56071	C56071	Cigarette smoked past week count	The number of cigarettes the participant has smoked in the past week	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2491-C56690	C56690	Imaging magnetoencephalography epileptic spike wave discharge type	The type of epileptic spike(s)/spike-wave-discharges (SWD) seen during magnetoencephalography (MEG) processing and analysis	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2491-C56650	C56650	Imaging stimulation task delivery system other text	Text describing another simulation or task delivery system used during s\data acquisition	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F3060-C59652	C59652	Aura without headache frequency category	Category that describes how frequently the headache associated symptom of aura without headache affects the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2610-C56086	C56086	Recreational substance name	The name of the recreational substance the participant uses	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2491-C56698	C56698	Imaging magnetoencephalography time frequency analysis method other text	Text describing another method of time-frequency analysis of the magnetoencephalography (MEG) recording	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C56774	C56774	Cortical evoked potential latency measurement	The measurement of any latencies of transient evoked potentials	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2491-C56658	C56658	General anesthesia text	Text describing the drug(s) and dosage of any general anesthesia used on the patient	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2491-C56618	C56618	Imaging magnetoencephalography coil configuration other text	Text describing another type of coil configuration used for the MEG imaging	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2673-C56779	C56779	Headache sound aggravate indicator	The indicator relating to whether sound aggravates the participant/subject or makes his/her headache worse	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C55793	C55793	Imaging paradigm pulse sequence type	The type of pulse sequence used for imaging	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C59620	C59620	Headache severe average monthly frequency	Frequency of the average monthly headaches the participant/subject experienced with severe severity	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2610-C56098	C56098	Sample temperature before centrifugation storage value	The temperature of the biomarker sample before centrifugation or storage	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2614-C55775	C55775	Imaging ictal pain intensity value	The value related to the intensity of the subject's pain if the timing is ictal	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2491-C56666	C56666	Imaging magnetoencephalography scanner data format exported type	The type of data format that was exported from magnetoencephalography (MEG) scanners to local workstations/computers	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2491-C56626	C56626	Imaging magnetoencephalography magnetic noise assessment other text	Text describing another type of assessment of magnetic noise used for the MEG imaging	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2632-C56597	C56597	Imaging white matter lesion count	The number of white matter lesions present in the image	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C59628	C59628	Headache days per month count	Count of the number of days the participant/subject experienced headaches in a month	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2610-C56111	C56111	Specimen centrifugation speed value	The speed at which the specimen was centrifuged	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C54753	C54753	Specimen collection tube type	Type of tube used for specimen collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2491-C56674	C56674	Imaging magnetoencephalography artifact removal method indicator	The indicator related to whether there was a method for artifact removal during magnetoencephalography (MEG)	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2491-C56634	C56634	Imaging baseline time	The amount of time that the pre-trigger (baseline) lasted	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.