CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C55775	Imaging ictal pain intensity value	The value related to the intensity of the subject's pain if the timing is ictal	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
C56709	Imaging magnetoencephalography amplitude other text	Text describing another type of amplitude used for analysis of the magnetoencephalography (MEG) data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
C56043	Headache migraine onset time	The time that the subject's headache started	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
C55782	Imaging scanner software hardware update text	Text describing any scanner software or hardware updates during the time the study was performed	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
C56744	Cortical evoked potential auditory repetition rate interval	The repetition rate of the auditory stimulus used for evoked potential recording, expressed as an interstimulus interval	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
C59656	Headache category other text	The free-text field related to 'Headache category' specifying other text	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C56600	Imaging functional scan performed task count	The total number of performed tasks during the patient's functional scan	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
C56717	Imaging magnetoencephalography spectral magnitude other text	Text describing another spectral magnitude that was used for the analysis of the magnetoencephalography (MEG) data	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
C56777	Headache start date and time	The time at which the participant/subject's headache started	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
C55993	Regular aerobic exercise days week number	Number of days per typical week that the participant/subject engages in aerobic exercises	Supplemental	Behavioral History	False	Headache	Headache
C56068	Migraine without aura meet International Classification of Headache Disorders criteria indicator	Indicator related to whether or not the patient/subject's condition meets the criteria of being a migraine without aura based on International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
C56752	Cortical evoked potential recording parameter electrode positioning type	The type of electrode and its positioning in relation to the evoked potential recording	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
C59664	Headache after traumatic brain injury change indicator	Indicator of whether the participant's/subject's headaches after a traumatic brain injury changed followingf the TBI	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C56608	Imaging evoked functional scan stimulation type	The type of stimulation used for the patient's evoked functional scan, if applicable	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
C56725	Imaging magnetoencephalography abnormal activity activation anatomic site	The location of any abnormal activity/activation found in the magnetoencephalography (MEG) recording	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
C56785	Headache premonitory symptom type	The type of premonitory symptom(s) (symptoms that come before headache) that the participant/subject experienced	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
C56112	Chronic migraine fulfill further International Classification of Headache Disorders criteria type	Type of further criteria the patient/subject's headaches fulfill, on =8 days per month for >3 months from International Classification of Headache Disorders	Supplemental	Migraine Diagnosis Questionnaire	False	Headache	Headache
C56042	Headache severity scale	The scale of the amount of headache the participant/subject is experiencing	Supplemental	Rescue Treatments	False	Headache	Headache
C56760	Evoked potential component define criteria text	Text defining the evoked potential components and the criteria for their identification	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
C59672	Headache severe before traumatic brain injury average monthly frequency	Average monthly frequency of headaches the participant/subject experienced with severe severity prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C56020	Sibling live count unknown indicator	The indicator relating to whether or not the subject knows how many living siblings he/she has	Supplemental	Medical and Family History	False	Headache	Headache
C56728	Imaging cortical evoked potential modality type	The type of modality used for cortical evoked potentials	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
C56146	Assay result other text	The free-text field describing another result from the assay	Exploratory	Biospecimens Collection and Processing	False	Headache	Headache
C56701	Magnetoencephalography/ electroencephalography source analysis beamformer other text	Text describing another type of beamformer used for spatial filtering of the magnetoencephalography (MEG) recording	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
C56613	Imaging magnetoencephalography sensor array type	The type of sensor array used for MEG imaging	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.