CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F3060-C59607	C59607	Headache traumatic brain injury previous count	Count of previous traumatic brain injuries not including the current event experienced by the participant/subject that led to the current post traumatic headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2673-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F3060-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2684-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F3059-C15937	C15937	Headache typical severity type	Level of headache intensity described by the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2673-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F3060-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2684-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F3059-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2618-C22804	C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	Supplemental	Rescue Treatments	False	Headache	Headache
F2624-C22804	C22804	Pain present eleven point intensity scale	Scale for the participant's current pain intensity based on an a scale of 0-10	Supplemental-Highly Recommended	Headache Calendar	False	Headache	Headache
F2614-C59018	C59018	Imaging metabolite quantification procedure tool other text	The free-text field related to 'Imaging metabolite quantification procedure tool other text', specifying other text. Type of imaging quantification tool	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2613-C02008	C02008	Medication prior or concomitant end date and time	The date (and time, if applicable and known) the administration of the prior/concomitant medication ended	Supplemental	Concomitant Medications	False	Headache	Headache
F2613-C02016	C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental	Concomitant Medications	False	Headache	Headache
F2618-C02016	C02016	Medication prior or concomitant start date and time	The date (and time, if applicable and known) on which the prior/concomitant medication usage began	Supplemental	Rescue Treatments	False	Headache	Headache
F2618-C18737	C18737	Medication prior or concomitant route type other text	The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication	Supplemental	Rescue Treatments	False	Headache	Headache
F2613-C18737	C18737	Medication prior or concomitant route type other text	The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication	Supplemental	Concomitant Medications	False	Headache	Headache
F2618-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Rescue Treatments	False	Headache	Headache
F2613-C02015	C02015	Medication prior or concomitant route type	Type of access route for the administration of the prior/concomitant medication	Supplemental	Concomitant Medications	False	Headache	Headache
F2618-C02013	C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Rescue Treatments	False	Headache	Headache
F2613-C02013	C02013	Medication prior or concomitant dose unit of measure UCUM code	Code that represents the dosage unit of measure of the prior or concomitant medication administered. Unified Code for Units of Measure (UCUM)	Supplemental	Concomitant Medications	False	Headache	Headache
F2613-C02022	C02022	Medication prior or concomitant dose unit of measure	Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Concomitant Medications	False	Headache	Headache
F2618-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Rescue Treatments	False	Headache	Headache
F2613-C02006	C02006	Medication prior or concomitant dose	Dose of prior/concomitant medication taken per administration	Supplemental	Concomitant Medications	False	Headache	Headache
F2618-C18736	C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Rescue Treatments	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.