CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 1122
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59626 Headache days per week count

Count of days the participant/subject experienced headaches in a week

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59625 Week month code

Ordinal week code for the weeks in a single month

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59624 Headache after traumatic brain injury intensity change category

Category which represents headache intensity since participant/subject experienced a traumatic brain injury

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59623 Headache after traumatic brain injury frequency change category

Category which represents headache frequency since participant/subject experienced a traumatic brain injury

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59622 Headache at least 30 days ratio value

Value which represents the headache ratio calculation. Applies only to patients that have had post traumatic headache for at least 30 days

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59621 Headache post traumatic complete freedom monthly frequency day count

Count of monthly frequency of headaches the participant/subject experienced completely free from headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59620 Headache severe average monthly frequency

Frequency of the average monthly headaches the participant/subject experienced with severe severity

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59619 Headache moderate average monthly frequency

Frequency of the average monthly headaches the participant/subject experienced with moderate severity

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59618 Headache mild average monthly frequency

Frequency of the average monthly headaches the participant/subject experienced with mild severity

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59617 Headache less than 30 day ratio value

Value which represents the headache ratio calculation. Value calculated by dividing the response from Q (a) by Q (b) and multiplying by 100. Applies only to patients that have had post traumatic headache for less than 30 days

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C15972 Headache aura symptom type

Type of aura (warning) that a headache was going to start

Supplemental-Highly Recommended Headache Diary - Acute Therapies Headache Headache
C15972 Headache aura symptom type

Type of aura (warning) that a headache was going to start

Supplemental-Highly Recommended Headache Diary - Preventive Therapies Headache Headache
C15972 Headache aura symptom type

Type of aura (warning) that a headache was going to start

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C15972 Headache aura symptom type

Type of aura (warning) that a headache was going to start

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C19035 Headache aura symptom other text

The free-text field related to 'Headache aura symptom type' specifying other text. Type of aura (warning) that a headache was going to start

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C19035 Headache aura symptom other text

The free-text field related to 'Headache aura symptom type' specifying other text. Type of aura (warning) that a headache was going to start

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59616 Headache day since onset count

Count of days passed since participant's/subject's onset of post traumatic headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59615 Headache day per month frequency

Frequency of headaches the participant/subject experienced within the last 30 days

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59614 Headache continuous indicator

Indicator of whether the participant's/subject's headaches have been continuous

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59613 Headache after traumatic brain injury worsen delay duration category

Category which represents when the participant's/subject's headaches began to worsen after a traumatic brain injury

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59612 Headache traumatic brain injury onset delay duration category

Category which represents how long after the participant's/subject's traumatic brain injury that their headaches began

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59611 Headache post traumatic start date

Date (and time, if applicable and known) for the start of participant's/subject's post traumatic headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59610 Headache post traumatic prior history unit of measure

Unit of measure for the number of days, months or years the participant/subject suffered from post traumatic headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59609 Headache post traumatic prior history time unit count

Number of days, months or years the participant/subject suffered from post traumatic headache

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59608 Headache post traumatic prior history indicator

Indicator of whether the participant/subject experienced previous post traumatic headaches

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
Displaying 151 - 175 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.