CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 22 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2621-C15988	C15988	Employment paid job count	The number of paid jobs the participant/subject has	Supplemental	Social Status	False	Headache	Headache
F2673-C15950	C15950	Headache typical pain type	Type of pain the participant/subject experiences with the headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2617-C17994	C17994	Pregnancy complication text	Text specifying any complications the participant/subject experienced during this pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15633	C15633	Imaging volumetric result	Results of volumetric measures/comparison of the image study	Supplemental	Anatomical Imaging	False	Headache	Headache
F2621-C15996	C15996	Caretaker of child type	Indicates who takes care of the child or adolescent	Supplemental	Social Status	False	Headache	Headache
F2615-C15544	C15544	Imaging stimulation intensity value	Stimulation intensity used on imaging	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2620-C18023	C18023	Pain intensity stimulation result	Scale of 0-10 used to measure the intensity of the pain resulting from stimulation	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2673-C15975	C15975	Headache post initial study medication time interval	The time interval after taking initial study medication for headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C18615	C18615	Imaging analysis diffusion measurement type	Type of analysis approach for diffusion tensor imaging (DTI) measurement	Supplemental	Anatomical Imaging	False	Headache	Headache
F2614-C15555	C15555	Imaging visual analysis performed indicator	Whether visual analysis was performed while blind to clinical data	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2673-C19034	C19034	Headache or migraine medication taken other text	The free-text field related to 'Headache or migraine medication taken type' specifying other text. Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C19074	C19074	Imaging analysis diffusion measurement other text	The free-text field related to 'Imaging analysis diffusion measurement type' specifying other text. Type of analysis approach for diffusion tensor imaging (DTI) measurement	Supplemental	Anatomical Imaging	False	Headache	Headache
F2622-C15552	C15552	Imaging stimuli duration	Duration of stimuli used on imaging test	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2673-C53077	C53077	Migraine headache light indicator	Indicator as to whether light bothers participant/subject when experiencing a migraine headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2684-C53077	C53077	Migraine headache light indicator	Indicator as to whether light bothers participant/subject when experiencing a migraine headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2640-C14458	C14458	Hip circumference measurement	A measurement of the body circumference at the level of the hip. It should be the hip circumference at its widest part of the buttocks or hip	Supplemental	Vital Signs	False	Headache	Headache
F2640-C14428	C14428	Waist circumference measurement	A measurement of the body circumference at the level of the waist. It should be the smallest circumference of the natural waist, usually just above the belly button	Supplemental	Vital Signs	False	Headache	Headache
F2640-C14449	C14449	Hip circumference unit of measure	Units used to measure the hip circumference	Supplemental	Vital Signs	False	Headache	Headache
F2632-C15431	C15431	Imaging white matter volume measurement	Volume of white matter in the brain	Supplemental	Anatomical Imaging	False	Headache	Headache
F2610-C16174	C16174	Menopause indicator	Indicates whether participant is currently menopausal	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2610-C16177	C16177	Post-menopausal indicator	Indicates whether participant is post-menopausal	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2634-C13965	C13965	Imaging paradigm task design type	Nature of stimuli presented	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.