CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1001 - 1025 of 1122

Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2620-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15611	C15611	Imaging standard average brain text	Text representing the standard average brain used	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2620-C15920	C15920	Quantitative sensory testing test equipment text	Description of equipment used for testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15640	C15640	Imaging corrective analysis P-values number	P-values used for any corrective analysis	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C16021	C16021	Family history second-degree relative affected count	The number of second-degree relatives affected with the medical condition	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2619-C16040	C16040	Pregnancy fetus normal indicator	Indicates whether the fetus was normal	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2611-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	DNA Elements	False	Headache	Headache
F3059-C16208	C16208	Family history medical condition second-degree relative type	Relationship of the second-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2620-C15928	C15928	Quantitative sensory testing decrease stimulation rate value	Rate of decrease of stimulation used during testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2684-C15962	C15962	Headache affect activity level indicator	Indicates whether the headache changes activity level (i.e., stop playing)	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16053	C16053	Birth length child value	Value of the length of the participant's/subject's child at birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2491-C15636	C15636	Imaging comparison P-values number	P-values used for comparisons between cohorts or the group averages	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2629-C15998	C15998	Relative first degree live count	The total number of the participant/subject first-degree living relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2684-C15977	C15977	Headache end date and time	The time of the day the headache ended	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2673-C15971	C15971	Headache warning symptom indicator	Indicator for any auras (warnings) that the headache was going to start	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C18009	C18009	Imaging threshold rationale text	Text representing the rationale for choosing a certain threshold for the results	Supplemental	Anatomical Imaging	False	Headache	Headache
F2673-C19027	C19027	Headache worst pain anatomic other text	The free-text field related to 'Headache worst pain anatomic site' specifying other text. Location of worst headache pain	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2622-C15538	C15538	Imaging motor phosphene threshold percent value	The value (percentage) of the motor/phosphene threshold used during the test on the participant/subject, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form.	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2615-C55786	C55786	Imaging evoked potential (EV) Chemical nociceptive stimulation substance name	The name of the chemical nociceptive stimulation substance used as part of the Blink Reflex and Evoked Potential Imaging test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2622-C15583	C15583	Multiple application indicator	The indicator of whether the participant/subject received multiple TMS Imaging applications, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form.	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2617-C16009	C16009	Birth control last used date and time	Date (and time, if applicable and known) birth control was last used	Supplemental	Pregnancy Information	False	Headache	Headache
F2610-C15629	C15629	Postpartum indicator	Whether the participant/subject is currently in her postpartum phase, after pregnancy phase, of pregnancy	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2684-C15899	C15899	Headache worst pain anatomic site	Location of worst headache pain	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2622-C19021	C19021	Stimulus waveform other text	The free-text field related to 'Stimulus waveform type' specifying other text. The type of stimulus waveform used during the test on the participant/subject, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2640-C15905	C15905	Body mass index percentile value	The participant/subject's body mass index (BMI) for age percentile calculated using a standardized growth chart	Supplemental	Vital Signs	False	Headache	Headache

Displaying 1001 - 1025 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.