CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2621-C19038	C19038	Caretaker of child other text	The free-text field related to 'Caretaker of child type' specifying other text. Indicates who takes care of the child or adolescent	Supplemental	Social Status	False	Headache	Headache
F2615-C15573	C15573	Imaging stimulation target type	The type of stimulation target of the imaging test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2629-C16021	C16021	Family history second-degree relative affected count	The number of second-degree relatives affected with the medical condition	Supplemental	Medical and Family History	False	Headache	Headache
F2619-C18000	C18000	Congenital anomalies child specification text	Text specifying any congenital anomalies of the participant/subject	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C15588	C15588	Imaging stimulation device make text	Make of device make used for stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2612-C15568	C15568	Imaging post-processing method name	Method used for image post-processing	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2629-C17990	C17990	Relative second degree live count unknown indicator	Indicator of the unknown number of living second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2620-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15611	C15611	Imaging standard average brain text	Text representing the standard average brain used	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2620-C15920	C15920	Quantitative sensory testing test equipment text	Description of equipment used for testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15640	C15640	Imaging corrective analysis P-values number	P-values used for any corrective analysis	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C16021	C16021	Family history second-degree relative affected count	The number of second-degree relatives affected with the medical condition	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2619-C16040	C16040	Pregnancy fetus normal indicator	Indicates whether the fetus was normal	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2611-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	DNA Elements	False	Headache	Headache
F3059-C16208	C16208	Family history medical condition second-degree relative type	Relationship of the second-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2620-C15928	C15928	Quantitative sensory testing decrease stimulation rate value	Rate of decrease of stimulation used during testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2684-C15962	C15962	Headache affect activity level indicator	Indicates whether the headache changes activity level (i.e., stop playing)	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16053	C16053	Birth length child value	Value of the length of the participant's/subject's child at birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2491-C15636	C15636	Imaging comparison P-values number	P-values used for comparisons between cohorts or the group averages	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2629-C15998	C15998	Relative first degree live count	The total number of the participant/subject first-degree living relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2684-C15977	C15977	Headache end date and time	The time of the day the headache ended	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16064	C16064	Pregnancy fetal diagnostic test result	Results of the fetal diagnostic testing performed during the pregnancy	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2617-C19044	C19044	Pregnancy prior history toxic exposure other text	The free-text field related to 'Pregnancy prior history toxic exposure type' specifying other text. Type of any substances or radiation potentially harmful to the embryo or fetus to which the participant/subject has ever been exposed during pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2673-C19027	C19027	Headache worst pain anatomic other text	The free-text field related to 'Headache worst pain anatomic site' specifying other text. Location of worst headache pain	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2622-C15538	C15538	Imaging motor phosphene threshold percent value	The value (percentage) of the motor/phosphene threshold used during the test on the participant/subject, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form.	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.