CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2610-C15618	C15618	Premenopausal indicator	Whether or not the participant/subject is currently in her premenopausal phase	Supplemental-Highly Recommended	Biospecimens Collection and Processing	False	Headache	Headache
F2684-C15899	C15899	Headache worst pain anatomic site	Location of worst headache pain	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2622-C19021	C19021	Stimulus waveform other text	The free-text field related to 'Stimulus waveform type' specifying other text. The type of stimulus waveform used during the test on the participant/subject, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2640-C15905	C15905	Body mass index percentile value	The participant/subject's body mass index (BMI) for age percentile calculated using a standardized growth chart	Supplemental	Vital Signs	False	Headache	Headache
F2611-C15549	C15549	Gene amino acid change name	In cases of an genetic variant or mutation, specify the amino acid change	Supplemental	DNA Elements	False	Headache	Headache
F2684-C15966	C15966	Diary day headache indicator	Indicator of whether the participant/subject experienced a headache on a particular day	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2620-C15925	C15925	Quantitative sensory testing examiner count	Number of examiners performing QST throughout the study	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2619-C16049	C16049	Birth child date and time	Date of birth of participant/subject's most recent live birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2629-C15999	C15999	Relative first degree decease count	The total number of the participant/subject first-degree deceased relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2684-C15978	C15978	Headache re-start date and time	The time of the day (24 hr clock) that the headache restarted	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2620-C15933	C15933	Quantitative sensory testing stimulus rest period duration unit of measure	The units used to measure duration between stimulus rest periods	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2619-C16060	C16060	Weight delivery mother unit of measure	Units for the measurement of the participant's/subject's weight at the time she gave birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2491-C18009	C18009	Imaging threshold rationale text	Text representing the rationale for choosing a certain threshold for the results	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2492-C15592	C15592	Imaging stimulation device model text	Model of device used for stimulation	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2629-C16025	C16025	Family history second-degree physician diagnosis count	The number of second-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History	False	Headache	Headache
F2634-C15592	C15592	Imaging stimulation device model text	Model of device used for stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2619-C17997	C17997	Pregnancy fetus not normal description text	Description of the abnormal pregnancy fetus	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2612-C15558	C15558	Imaging angiography method type	Type of angiography method performed	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2629-C17991	C17991	Relative second degree decease count unknown indicator	Indicator of the unknown number of deceased second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2634-C15623	C15623	Imaging nonstimulation fixation landmark indicator	Type of fixation landmark	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2619-C55936	C55936	Length birth child unit of measure	Measure of the length of the participant/subject's child at birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2612-C19015	C19015	Imaging angiography method other text	The free-text field related to 'Imaging angiography method type' specifying other text. Type of angiography method performed	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F3059-C15897	C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2634-C15642	C15642	Imaging statistical parametric mapping contrasts text	Define contrasts in statistical parametric mapping	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C16025	C16025	Family history second-degree physician diagnosis count	The number of second-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.