CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2617-C17994	C17994	Pregnancy complication text	Text specifying any complications the participant/subject experienced during this pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15633	C15633	Imaging volumetric result	Results of volumetric measures/comparison of the image study	Supplemental	Anatomical Imaging	False	Headache	Headache
F2621-C15996	C15996	Caretaker of child type	Indicates who takes care of the child or adolescent	Supplemental	Social Status	False	Headache	Headache
F2615-C15544	C15544	Imaging stimulation intensity value	Stimulation intensity used on imaging	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2620-C18023	C18023	Pain intensity stimulation result	Scale of 0-10 used to measure the intensity of the pain resulting from stimulation	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2673-C15975	C15975	Headache post initial study medication time interval	The time interval after taking initial study medication for headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C18615	C18615	Imaging analysis diffusion measurement type	Type of analysis approach for diffusion tensor imaging (DTI) measurement	Supplemental	Anatomical Imaging	False	Headache	Headache
F2614-C15555	C15555	Imaging visual analysis performed indicator	Whether visual analysis was performed while blind to clinical data	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2673-C19034	C19034	Headache or migraine medication taken other text	The free-text field related to 'Headache or migraine medication taken type' specifying other text. Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C19074	C19074	Imaging analysis diffusion measurement other text	The free-text field related to 'Imaging analysis diffusion measurement type' specifying other text. Type of analysis approach for diffusion tensor imaging (DTI) measurement	Supplemental	Anatomical Imaging	False	Headache	Headache
F2622-C15552	C15552	Imaging stimuli duration	Duration of stimuli used on imaging test	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2620-C15913	C15913	Quantitative sensory testing stimulation type	Type of QST stimulation	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15635	C15635	Imaging skull stripping performed indicator	Skull stripping performed for anatomical and functional images	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2491-C15638	C15638	Imaging multiple comparisons method text	Type of method(s) chosen for correcting for multiple comparisons	Supplemental	Magnetoencephalography (MEG)	False	Headache	Headache
F2611-C15549	C15549	Gene amino acid change name	In cases of an genetic variant or mutation, specify the amino acid change	Supplemental	DNA Elements	False	Headache	Headache
F2620-C15923	C15923	Quantitative sensory testing maximum stimuli duration unit of measure	The units used to measure maximum stimuli	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C18011	C18011	Imaging motion correction technique pass criteria text	Text of correction technique and pass criteria text	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C16208	C16208	Family history medical condition second-degree relative type	Relationship of the second-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2619-C16046	C16046	Pregnancy labor delivery complication indicator	Indicator of whether there were complications during labor/delivery	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2620-C15931	C15931	Quantitative sensory testing vibration electrical stimuli frequency value	Frequency of vibration or electrical stimuli used during testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C19019	C19019	Imaging acquisition type other text	The free-text field related to 'Imaging acquisition type' specifying other text. Type of imaging acquisition	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2684-C15969	C15969	Headache or migraine medication taken type	Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16057	C16057	Activity pulse grimace appearance respiration five minute child score	Assessment of a newborn which is recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness. This score describes the participant's/subject's child. Activity pulse grimace appearance respiration (APGAR)	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2492-C15592	C15592	Imaging stimulation device model text	Model of device used for stimulation	Supplemental	Cortical Evoked Potentials	False	Headache	Headache
F2629-C16002	C16002	Relative second degree live count	The total number of the participant/subject second-degree living relatives	Supplemental	Medical and Family History	False	Headache	Headache

Displaying 901 - 925 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.