CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2684-C15978	C15978	Headache re-start date and time	The time of the day (24 hr clock) that the headache restarted	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16065	C16065	Congenital anomaly child indicator	Indicates whether there were congenital anomalies in the participant's/subject's child	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2629-C16025	C16025	Family history second-degree physician diagnosis count	The number of second-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History	False	Headache	Headache
F2619-C18001	C18001	Newborn complication child specification text	Text specifying other newborn complications	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C15592	C15592	Imaging stimulation device model text	Model of device used for stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2618-C16211	C16211	Headache pain medication after study drug indicator	Indicator whether the subject has received any additional pain or headache medications after the study drug was administered	Supplemental	Rescue Treatments	False	Headache	Headache
F2629-C17991	C17991	Relative second degree decease count unknown indicator	Indicator of the unknown number of deceased second-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2620-C15911	C15911	Quantitative sensory testing outcome type	Type of QST outcome being measured	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15623	C15623	Imaging nonstimulation fixation landmark indicator	Type of fixation landmark	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F3059-C15897	C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2620-C15921	C15921	Quantitative sensory testing maximum stimulation intensity value	Measure of the maximum level of stimulation used during the testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15642	C15642	Imaging statistical parametric mapping contrasts text	Define contrasts in statistical parametric mapping	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C16025	C16025	Family history second-degree physician diagnosis count	The number of second-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2619-C16042	C16042	Delivery mode induced reason	Type of induced delivery that occurred during the live infant birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2611-C19011	C19011	Gene mutation specify text	The free-text field related to 'Gene mutation type'. The type of genetic variant or mutation shown	Supplemental	DNA Elements	False	Headache	Headache
F2673-C15939	C15939	Headache typical level activities affected result	Result of onset of headache in usually daily activities	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2617-C17993	C17993	Prenatal test text	Text notes of any comments regarding the selected prenatal testing type	Supplemental	Pregnancy Information	False	Headache	Headache
F2632-C15631	C15631	Imaging thickness result	Results of thickness measures/comparison of the image study	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C15936	C15936	Headache history indicator	Indicates whether participant/subject suffers from headaches	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2621-C15995	C15995	Household wage earners number	Number of wage earners in household	Supplemental	Social Status	False	Headache	Headache
F2639-C19037	C19037	Birth order other text	The free-text field related to 'Birth order number' specifying other text. Number of the birth order or the sequence of the participant's/subject's birth in the family group	Supplemental	Demographics	False	Headache	Headache
F2615-C15542	C15542	Imaging evoked potential recording system model name	The name of the recording system model used as part of the Blink Reflex and Evoked Potential Imaging test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2630-C15537	C15537	Imaging study condition type	Type of condition the imaging study is focusing on	Supplemental	Positron Emission Tomography Localization (PET)	False	Headache	Headache
F2620-C18022	C18022	Data point exceed safety parameter description text	Description specifying how the data points that exceeded the safety parameters were handled statistically	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2632-C18011	C18011	Imaging motion correction technique pass criteria text	Text of correction technique and pass criteria text	Supplemental	Anatomical Imaging	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.