CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 826 - 850 of 1122

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2620-C15912	C15912	Quantitative sensory testing outcome text	Definition of the QST outcome(s) chosen	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2619-C10558	C10558	Delivery or pregnancy termination last date and time	Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2611-C15522	C15522	Headache gene present indicator	Indicator of whether a gene associated with headache was present after genetic testing	Supplemental	DNA Elements	False	Headache	Headache
F2634-C15637	C15637	Imaging preprocessing method performed type	Imaging preprocessing method(s) performed	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C16006	C16006	Family history first-degree physician diagnosed count	The number of first-degree relatives with the medical condition confirmed by a physician	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2620-C15922	C15922	Quantitative sensory testing maximum stimulus duration	Maximum duration of stimuli used during the testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2619-C16044	C16044	Delivery cesarean section reason	Reason for the Cesarean section	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2611-C19013	C19013	Gene unclassified variant shown specify text	The free-text field related to 'Gene unclassified variant shown indicator'. Indicator of whether an unclassified variant shown	Supplemental	DNA Elements	False	Headache	Headache
F3059-C15961	C15961	Headache worse during activity indicator	Indicates whether activity or playing makes headache worse	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2621-C15988	C15988	Employment paid job count	The number of paid jobs the participant/subject has	Supplemental	Social Status	False	Headache	Headache
F2673-C15897	C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C15605	C15605	Imaging registration technique used indicator	Indicator of whether a registration technique used to calculate the transformation to a standard average brain space	Supplemental	Anatomical Imaging	False	Headache	Headache
F2639-C14124	C14124	Social security number	A nine-digit number issued to U.S. citizens, permanent residents, and temporary (working) residents under section 205(c)(2) of the Social Security Act, codified as 42 U.S.C. § 405(c)(2). The number is issued to an individual by the Social Security Administration, an independent agency of the United States government	Supplemental	Demographics	False	Headache	Headache
F2617-C17994	C17994	Pregnancy complication text	Text specifying any complications the participant/subject experienced during this pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
F2621-C15996	C15996	Caretaker of child type	Indicates who takes care of the child or adolescent	Supplemental	Social Status	False	Headache	Headache
F2615-C15544	C15544	Imaging stimulation intensity value	Stimulation intensity used on imaging	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2620-C18023	C18023	Pain intensity stimulation result	Scale of 0-10 used to measure the intensity of the pain resulting from stimulation	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2673-C15966	C15966	Diary day headache indicator	Indicator of whether the participant/subject experienced a headache on a particular day	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C15639	C15639	Imaging coordinate of significant cluster text	Text representing the coordinate of significant clusters	Supplemental	Anatomical Imaging	False	Headache	Headache
F2614-C15555	C15555	Imaging visual analysis performed indicator	Whether visual analysis was performed while blind to clinical data	Supplemental	Magnetic Resonance Spectroscopy (MRS)	False	Headache	Headache
F2673-C15978	C15978	Headache re-start date and time	The time of the day (24 hr clock) that the headache restarted	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2622-C15552	C15552	Imaging stimuli duration	Duration of stimuli used on imaging test	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2610-C15604	C15604	Headache severity prior sample collection score	The score rating of the severity of the participant/subject's last headache prior to sample collection	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
F2622-C15589	C15589	Stimulus waveform type	The type of stimulus waveform used during the test on the participant/subject, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form.	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2617-C16013	C16013	Pregnancy estimated delivery date ultrasound based indicator	Indicator of whether the estimated delivery date is based on an ultrasound examination	Supplemental	Pregnancy Information	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.