CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2632-C15576	C15576	Imaging diffusion b-value count	Count of b-values within the diffusion imaging study	Supplemental	Anatomical Imaging	False	Headache	Headache
F2632-C15611	C15611	Imaging standard average brain text	Text representing the standard average brain used	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C15897	C15897	Headache associated symptom type	The associated symptoms the participant/subject experienced with headache	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2621-C15993	C15993	Dependent children number	Number of dependent children	Supplemental	Social Status	False	Headache	Headache
F2639-C15985	C15985	Multiple birth indicator	Indicates whether the participant/subject was a part of a multiple live birth	Supplemental	Demographics	False	Headache	Headache
F2615-C15531	C15531	Imaging evoked potential stimulation frequency value	The stimulation frequency used on the participant/subject as part of the Blink Reflex and Evoked Potential Imaging test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2673-C15969	C15969	Headache or migraine medication taken type	Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C16210	C16210	Imaging data exported format text	Format of the data exported from scanner to local workstation/computer	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C16208	C16208	Family history medical condition second-degree relative type	Relationship of the second-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2621-C19038	C19038	Caretaker of child other text	The free-text field related to 'Caretaker of child type' specifying other text. Indicates who takes care of the child or adolescent	Supplemental	Social Status	False	Headache	Headache
F2615-C15573	C15573	Imaging stimulation target type	The type of stimulation target of the imaging test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2673-C15980	C15980	Headache affected activity type	Types of school or other activities affected by the headache	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2622-C15531	C15531	Imaging evoked potential stimulation frequency value	The stimulation frequency used on the participant/subject as part of the Blink Reflex and Evoked Potential Imaging test	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
F2615-C55785	C55785	Imaging evoked potential (EV) Chemical nociceptive stimulation method name	The name of the chemical nociceptive stimulation method used as part of the Blink Reflex and Evoked Potential Imaging test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2620-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15611	C15611	Imaging standard average brain text	Text representing the standard average brain used	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2620-C15920	C15920	Quantitative sensory testing test equipment text	Description of equipment used for testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15640	C15640	Imaging corrective analysis P-values number	P-values used for any corrective analysis	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C16021	C16021	Family history second-degree relative affected count	The number of second-degree relatives affected with the medical condition	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2619-C16040	C16040	Pregnancy fetus normal indicator	Indicates whether the fetus was normal	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2611-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	DNA Elements	False	Headache	Headache
F3059-C16208	C16208	Family history medical condition second-degree relative type	Relationship of the second-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
F2620-C15928	C15928	Quantitative sensory testing decrease stimulation rate value	Rate of decrease of stimulation used during testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2684-C15962	C15962	Headache affect activity level indicator	Indicates whether the headache changes activity level (i.e., stop playing)	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16053	C16053	Birth length child value	Value of the length of the participant's/subject's child at birth	Exploratory	Pregnancy Outcome	False	Headache	Headache

Displaying 801 - 825 of 1122

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.