CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 76 - 100 of 1122
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C59649 Dizziness vertigo without headache frequency category

Category that describes how frequently the headache associated symptom of dizziness and/or vertigo affects the participant/subject

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59633 Headache current pain scale

Scale for the current pain of this headache on a scale of 0-10

Supplemental Post-traumatic Headache (PTH) Mild TBI Questionnaire Headache Headache
C59684 Aura without headache indicator

Indicator of whether participant/subject experienced an aura without a headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59683 Memory concentration difficult without headache indicator

Indicator of whether participant/subject experienced difficulty with memory/concentration without a headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59682 Gait posture imbalance without headache indicator

Indicator of whether participant/subject experienced gait and/or postural imbalance without a headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59681 Dizziness vertigo without headache indicator

Indicator of whether participant/subject experienced dizziness and/or vertigo without a headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59680 Neck pain stiffness without headache indicator

Indicator of whether participant/subject experienced neck pain/stiffness without a headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59679 Sound sensitive without headache indicator

Indicator of whether participant/subject experienced sensitivity to sound without a headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59678 Light sensitive without headache indicator

Indicator of whether participant/subject experienced sensitivity to light without a headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59677 Vomit without headache indicator

Indicator of whether participant/subject experienced vomiting without a headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59676 Nausea without headache indicator

Indicator of whether participant/subject experienced nausea without a headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59675 Headache before traumatic brain injury noncontinuous inadequate treatment duration

Duration of participant/subject's inadequately treated noncontinuous headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59674 Headache before traumatic brain injury continuous indicator

Indicator of whether headaches experienced by the participant/subject were continuous prior to traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59673 Headache before traumatic brain injury complete freedom monthly day count

Count of monthly frequency of complete freedom from headache the participant/subject experienced prior to traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59672 Headache severe before traumatic brain injury average monthly frequency

Average monthly frequency of headaches the participant/subject experienced with severe severity prior to traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59671 Headache moderate before traumatic brain injury average monthly frequency

Average monthly frequency of headaches the participant/subject experienced with moderate severity prior to traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59670 Headache mild before traumatic brain injury average monthly frequency

Average monthly frequency of headaches the participant/subject experienced with mild severity prior to traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59669 Headache before traumatic brain injury monthly frequency

Frequency of monthly headaches the participant/subject experienced prior to traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59668 Headache symptom change after traumatic brain injury type

Type of headache symptoms experienced by the participant/subject following traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59667 Headache after traumatic brain injury symptom change indicator

Indicator of whether the participant's/subject's headaches symptoms changed following traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59666 Headache after traumatic brain injury frequency change indicator

Indicator of whether the participant/subject is experiencing more frequenct headaches following traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59665 Headache after traumatic brain injury intensity change indicator

Indicator of whether the participant/subject is experiencing more intense headaches following traumatic brain injury

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59664 Headache after traumatic brain injury change indicator

Indicator of whether the participant's/subject's headaches after a traumatic brain injury changed followingf the TBI

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59663 Headache first date

Date of the participant's/subject's first headache

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
C59662 Headache prior diagnosis type other text

The free-text field related to 'Headache prior diagnosis type' specifying other text

Supplemental Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire Headache Headache
Displaying 76 - 100 of 1122

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.