CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C59633	Headache current pain scale	Scale for the current pain of this headache on a scale of 0-10	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
C59684	Aura without headache indicator	Indicator of whether participant/subject experienced an aura without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59683	Memory concentration difficult without headache indicator	Indicator of whether participant/subject experienced difficulty with memory/concentration without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59682	Gait posture imbalance without headache indicator	Indicator of whether participant/subject experienced gait and/or postural imbalance without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59681	Dizziness vertigo without headache indicator	Indicator of whether participant/subject experienced dizziness and/or vertigo without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59680	Neck pain stiffness without headache indicator	Indicator of whether participant/subject experienced neck pain/stiffness without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59679	Sound sensitive without headache indicator	Indicator of whether participant/subject experienced sensitivity to sound without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59678	Light sensitive without headache indicator	Indicator of whether participant/subject experienced sensitivity to light without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59677	Vomit without headache indicator	Indicator of whether participant/subject experienced vomiting without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59676	Nausea without headache indicator	Indicator of whether participant/subject experienced nausea without a headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59675	Headache before traumatic brain injury noncontinuous inadequate treatment duration	Duration of participant/subject's inadequately treated noncontinuous headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59674	Headache before traumatic brain injury continuous indicator	Indicator of whether headaches experienced by the participant/subject were continuous prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59673	Headache before traumatic brain injury complete freedom monthly day count	Count of monthly frequency of complete freedom from headache the participant/subject experienced prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59672	Headache severe before traumatic brain injury average monthly frequency	Average monthly frequency of headaches the participant/subject experienced with severe severity prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59671	Headache moderate before traumatic brain injury average monthly frequency	Average monthly frequency of headaches the participant/subject experienced with moderate severity prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59670	Headache mild before traumatic brain injury average monthly frequency	Average monthly frequency of headaches the participant/subject experienced with mild severity prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59669	Headache before traumatic brain injury monthly frequency	Frequency of monthly headaches the participant/subject experienced prior to traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59668	Headache symptom change after traumatic brain injury type	Type of headache symptoms experienced by the participant/subject following traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59667	Headache after traumatic brain injury symptom change indicator	Indicator of whether the participant's/subject's headaches symptoms changed following traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59666	Headache after traumatic brain injury frequency change indicator	Indicator of whether the participant/subject is experiencing more frequenct headaches following traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59665	Headache after traumatic brain injury intensity change indicator	Indicator of whether the participant/subject is experiencing more intense headaches following traumatic brain injury	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59664	Headache after traumatic brain injury change indicator	Indicator of whether the participant's/subject's headaches after a traumatic brain injury changed followingf the TBI	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59663	Headache first date	Date of the participant's/subject's first headache	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59662	Headache prior diagnosis type other text	The free-text field related to 'Headache prior diagnosis type' specifying other text	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache
C59661	Headache prior diagnosis type	Type of prior headache history diagnosis	Supplemental	Post-traumatic Headache (PTH) - Headaches Prior to TBI Questionnaire	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.