CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2629-C16012	C16012	Medical history condition diagnosis indicator	Indicator of whether the participant/subject has been diagnosed with the medical condition/disease	Supplemental	Medical and Family History	False	Headache	Headache
F2684-C19034	C19034	Headache or migraine medication taken other text	The free-text field related to 'Headache or migraine medication taken type' specifying other text. Type of pain medication(s) taken by participant/subject	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C17998	C17998	Pregnancy labor delivery complication specification text	Text about the participant/subject's experience with any complications during labor/delivery	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C15580	C15580	Imaging acquisition type	Type of imaging acquisition	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2612-C15561	C15561	Imaging angiography contrast enhanced text	If contrast enhanced in angiography, specify the method	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
F2629-C17988	C17988	Relative first degree decease count unknown indicator	Indicator of the unknown number of deceased first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
F2619-C55937	C55937	Birth weight mother value	Value of the weight of the participant/subject at birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2634-C15606	C15606	Imaging multiple evoked functional acquisitions indicator	Multiple evoked functional acquisitions	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2620-C15916	C15916	Statistical method used text	Details specifying the statistical method used to combine data if test was performed more than once	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C15638	C15638	Imaging multiple comparisons method text	Type of method(s) chosen for correcting for multiple comparisons	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C16010	C16010	Headache migraine diagnosis indicator	Indicator of whether the participant/subject has been diagnosed with the type of headache or migraine	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2619-C11081	C11081	Delivery caesarean timing status	Status of the caesarean delivery	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2611-C15553	C15553	Gene unclassified variant shown indicator	Indicator of whether an unclassified variant shown	Supplemental	DNA Elements	False	Headache	Headache
F2620-C15926	C15926	Quantitative sensory testing thermode electrode size value	Size of the thermode/electrode used during testing	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2634-C18018	C18018	Imaging rationale threshold results text	Rationale for thresholds	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
F2626-C56045	C56045	Headache migraine physician diagnosis medical documentation indicator	Indicator of whether the participant/subject has a physician diagnosis or medical documentation of headaches or migraines	Supplemental	Medical and Family History of Headache/Migraine	False	Headache	Headache
F2684-C15950	C15950	Headache typical pain type	Type of pain the participant/subject experiences with the headache	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
F2619-C16050	C16050	Phenotypic sex child type	Sex of the participant/subject's child based on physical examination	Exploratory	Pregnancy Outcome	False	Headache	Headache
F2673-C15967	C15967	Diary day migraine indicator	Indicator of whether the participant/subject thought the headache was a migraine	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2632-C15640	C15640	Imaging corrective analysis P-values number	P-values used for any corrective analysis	Supplemental	Anatomical Imaging	False	Headache	Headache
F3060-C16207	C16207	Family history medical condition first-degree relative type	Relationship of the first-degree family member or ancestor with the medical condition or health related event to the participant/subject	Supplemental	Post-traumatic Headache (PTH) Mild TBI Questionnaire	False	Headache	Headache
F2615-C15562	C15562	Imaging total pulse count	Total number of pulses used on imaging	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
F2620-C19030	C19030	Quantitative sensory testing test methodology other text	The free-text field related to 'Quantitative sensory testing test methodology type' specifying other text. Type of methodology used for QST imaging	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
F2673-C15979	C15979	Headache re-start end date and time	The time of the day (24 hr clock) that the headache ended after headache restarted	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache
F2622-C15526	C15526	Imaging transcranial magnetic stimulation equipment name	The name of TMS Imaging equipment used during the test on the participant/subject, specifically, manufacturer and model name, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.