CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 176 - 200 of 1273

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C15573	Imaging stimulation target type	The type of stimulation target of the imaging test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
C17015	Headache Impact Questionnaire (HImQ) - Chore ability reduced headache percent measure	Measurement of percentage of reduced ability to do housework or chores when you have a headache, as part of Headache Impact Questionnaire	Exploratory	Headache Impact Questionnaire (HImQ)	True	Headache	Headache
C15531	Imaging evoked potential stimulation frequency value	The stimulation frequency used on the participant/subject as part of the Blink Reflex and Evoked Potential Imaging test	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
C55785	Imaging evoked potential (EV) Chemical nociceptive stimulation method name	The name of the chemical nociceptive stimulation method used as part of the Blink Reflex and Evoked Potential Imaging test	Supplemental	Nociceptive Blink Reflex and Pain-Related Evoked Potentials	False	Headache	Headache
C17988	Relative first degree decease count unknown indicator	Indicator of the unknown number of deceased first-degree relatives	Supplemental	Medical and Family History	False	Headache	Headache
C15627	Pregnancy gestational week value	Participant/subject's current number of gestational day(s) or week(s)	Supplemental	Biospecimens Collection and Processing	False	Headache	Headache
C15916	Statistical method used text	Details specifying the statistical method used to combine data if test was performed more than once	Supplemental	Quantitative Sensory Testing (QST)	False	Headache	Headache
C16040	Pregnancy fetus normal indicator	Indicates whether the fetus was normal	Exploratory	Pregnancy Outcome	False	Headache	Headache
C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	DNA Elements	False	Headache	Headache
C19012	Imaging stimulation intensity threshold other text	The free-text field related to 'Imaging stimulation intensity threshold type' specifying other text. The type of stimulation intensity threshold used during the test on the participant/subject, as part of the Transcranial Magnetic Stimulation (TMS) Imaging form	Supplemental	Transcranial Magnetic Stimulation (TMS)	False	Headache	Headache
C16017	Prenatal testing result	Results of the selected prenatal testing type	Supplemental	Pregnancy Information	False	Headache	Headache
C15962	Headache affect activity level indicator	Indicates whether the headache changes activity level (i.e., stop playing)	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
C16053	Birth length child value	Value of the length of the participant's/subject's child at birth	Exploratory	Pregnancy Outcome	False	Headache	Headache
C16028	Pregnancy prior history toxic exposure type	Type of any substances or radiation potentially harmful to the embryo or fetus to which the participant/subject has ever been exposed during pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
C14669	Functional Disability Inventory (FDI) - parent form child difficulty shopping scale	Scale determining level of physical trouble or difficulty child experiences going shopping, as a part of the Functional Disability (FDI) Parent Form	Supplemental	Functional Disability Inventory - Parent Form (FDI)	True	Headache	Headache
C15998	Relative first degree live count	The total number of the participant/subject first-degree living relatives	Supplemental	Medical and Family History	False	Headache	Headache
C15977	Headache end date and time	The time of the day the headache ended	Supplemental-Highly Recommended	Headache Diary - Preventive Therapies	False	Headache	Headache
C16064	Pregnancy fetal diagnostic test result	Results of the fetal diagnostic testing performed during the pregnancy	Exploratory	Pregnancy Outcome	False	Headache	Headache
C19044	Pregnancy prior history toxic exposure other text	The free-text field related to 'Pregnancy prior history toxic exposure type' specifying other text. Type of any substances or radiation potentially harmful to the embryo or fetus to which the participant/subject has ever been exposed during pregnancy	Supplemental	Pregnancy Information	False	Headache	Headache
C14647	Functional Disability Inventory (FDI) - child form riding bus car scale	The scale of the child's or adolescent's ability to ride the bus to school or travel in a car when sick or not feeling well from the past two weeks, as part of the Functional Disability Inventory (FDI) - Child and Adolescent Form	Supplemental	Functional Disability Inventory - Child and Adolescent Form (FDI)	True	Headache	Headache
C16021	Family history second-degree relative affected count	The number of second-degree relatives affected with the medical condition	Supplemental	Medical and Family History	False	Headache	Headache
C18000	Congenital anomalies child specification text	Text specifying any congenital anomalies of the participant/subject	Exploratory	Pregnancy Outcome	False	Headache	Headache
C15588	Imaging stimulation device make text	Make of device make used for stimulation	Supplemental	Functional Magnetic Resonance Imaging (fMRI)	False	Headache	Headache
C15568	Imaging post-processing method name	Method used for image post-processing	Supplemental	Magnetic Resonance Angiography (MRA)	False	Headache	Headache
C15979	Headache re-start end date and time	The time of the day (24 hr clock) that the headache ended after headache restarted	Supplemental-Highly Recommended	Headache Diary - Acute Therapies	False	Headache	Headache

Displaying 176 - 200 of 1273

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.